Establishing a Psychosocial Screening Program in a High-Volume Pediatric Epilepsy Clinic Using the PedsQL—Epilepsy Module

Asato M. R. Doss J. L. , & Plioplys S. (2015). Clinic-friendly screening for cognitive and mental health problems in school-aged youth with epilepsy. Epilepsy & Behavior, 48, 97–102. 10.1016/j.yebeh.2015.03.033

Bell G. S. Gaitatzis A. Bell C. L. Johnson A. L. , & Sander J. W. (2009). Suicide in people with epilepsy: How great is the risk? Epilepsia, 50(8), 1933–1942. 10.1111/j.1528-1167.2009.02106.x

Berg A. T. Tarquinio D. , & Koh S. (2017). Early life epilepsies are a comorbidity of developmental brain disorders. Seminars in Pediatric Neurology, 24(4), 251–263. 10.1016/j.spen.2017.10.008

Camfield C. , & Camfield P. (2017). Cognitive disabilities and long-term outcomes in children with epilepsy: A tangled tail. Seminars in Pediatric Neurology, 24(4), 243–250. 10.1016/j.spen.2017.10.006

Curtin S. C. , & Heron M. P. (2019). Death rates due to suicide and homicide among persons aged 10–24: United States, 2000–2017, NCHS Data Brief. https://pubmed.ncbi.nlm.nih.gov/31751202/

Duong M. T. Bruns E. J. Lee K. Cox S. Coifman J. Mayworm A. , & Lyon A. R. (2021). Rates of mental health service utilization by children and adolescents in schools and other common service settings: A systematic review and meta-analysis. Administration and Policy in Mental Health and Mental Health Services Research, 48(3), 420–439. 10.1007/s10488-020-01080-9

Fayed N. Davis A. M. Streiner D. L. Rosenbaum P. L. Cunningham C. E. Lach L. M. Boyle M. H. Ronen G. M. Connolly M. Bello-Espinosa L. Rafay M. F. Appendino J. P. Shevell M. Carmant L. , & the QUALITÉ Study Group . (2015). Children’s perspective of quality of life in epilepsy. Neurology, 84(18), 1830–1837. 10.1212/WNL.0000000000001536

Fecske E. Glasier P. Collado L. M. V. , & Rende E. (2020). Standardized screening for depression in pediatric epilepsy. Journal of Pediatric Health Care, 34(1), 47–53. 10.1016/j.pedhc.2019.07.004

Ferro M. A. Avery L. Fayed N. Streiner D. L. Cunningham C. E. Boyle M. H. Lach L. Glidden G. Rosenbaum P. L. Ronen G. M. , & the QUALITÉ group . (2017). Child-and parent-reported quality of life trajectories in children with epilepsy: A prospective cohort study. Epilepsia, 58(7), 1277–1286. 10.1111/epi.13774

Follansbee-Junger K. W. Mann K. A. Guilfoyle S. M. Morita D. A. Varni J. W. , & Modi A. C. (2016). Development of the PedsQL™ epilepsy module: Focus group and cognitive interviews. Epilepsy & Behavior, 62, 115–120. 10.1016/j.yebeh.2016.06.011

Gandy M. Michaelis R. Acraman J. Donald K. A. Fitzpatrick M. LaFrance W. C. Margolis S. A. Modi A. C. Reuber M. Tang V. Thayer Z. Verity K. Wagner J. L. Wilmshurst J. Whittaker S. , & Munger Clary H. M. (2023). Integrated psychological care services within seizure settings: Key components and implementation factors among example services in four ILAE regions: A report by the ILAE Psychiatry Commission. Epilepsia, 64(7), 1766–1784. 10.1111/epi.17647

Guilfoyle S. M. Follansbee-Junger K. , & Modi A. C. (2013). Development and preliminary implementation of a psychosocial service into standard medical care for pediatric epilepsy. Clinical Practice in Pediatric Psychology, 1(3), 276–288. 10.1037/cpp0000031

Guilfoyle S. M. Mara C. A. Follansbee-Junger K. Smith A. W. Hater B. , & Modi A. C. (2019). Quality of life improves with integrated behavioral health services in pediatric new-onset epilepsy. Epilepsy & Behavior, 96, 57–60. 10.1016/j.yebeh.2019.04.017

Guilfoyle S. M. Monahan S. Wesolowski C. , & Modi A. C. (2015). Depression screening in pediatric epilepsy: Evidence for the benefit of a behavioral medicine service in early detection. Epilepsy & Behavior, 44, 5–10. 10.1016/j.yebeh.2014.12.021

Guilfoyle S. M. Wagner J. L. Modi A. C. Junger K. F. Barrett L. E. Riisen A. C. Schoffner K. R. Smith A. W. , & Weyand C. (2017). Pediatric epilepsy and behavioral health: The state of the literature and directions for evidence-based interprofessional care, training, and research. Clinical Practice in Pediatric Psychology, 5(1), 79–90. 10.1037/cpp0000169

Guilfoyle S. M. Wagner J. L. Smith G. , & Modi A. C. (2012). Early screening and identification of psychological comorbidities in pediatric epilepsy is necessary. Epilepsy & Behavior, 25(4), 495–500. 10.1016/j.yebeh.2012.09.041

Hacker K. Arsenault L. Franco I. Shaligram D. Sidor M. Olfson M. , & Goldstein J. (2014). Referral and follow-up after mental health screening in commercially insured adolescents. Journal of Adolescent Health, 55(1), 17–23. 10.1016/j.jadohealth.2013.12.012

Hanssen-Bauer K. Heyerdahl S. , & Eriksson A. S. (2007). Mental health problems in children and adolescents referred to a national epilepsy center. Epilepsy & Behavior, 10(2), 255–262. 10.1016/j.yebeh.2006.11.011

Hecimovic H. Salpekar J. Kanner A. M. , & Barry J. J. (2011). Suicidality and epilepsy: A neuropsychobiological perspective. Epilepsy & Behavior, 22(1), 77–84. 10.1016/j.yebeh.2011.04.059

Hermann B. Loring D. W. , & Wilson S. (2017). Paradigm shifts in the neuropsychology of epilepsy. Journal of the International Neuropsychological Society, 23(9–10), 791–805. 10.1017/S1355617717000650

Hulse D. Harvey A. S. Freeman J. L. Mackay M. T. Dabscheck G. , & Barton S. M. (2020). Clinical application of the PedsQL Epilepsy Module (PedsQL-EM) in an ambulatory pediatric epilepsy setting. Epilepsy & Behavior, 106, Article 107005. 10.1016/j.yebeh.2020.107005

Ivey-Stephenson A. Z. Demissie Z. Crosby A. E. Stone D. M. Gaylor E. Wilkins N. Lowry R. , & Brown M. (2020). Suicidal ideation and behaviors among high school students—youth risk behavior survey, United States, 2019. MMWR Supplements, 69(1), 47–55. 10.15585/mmwr.su6901a6

Junger K. W. Modi A. C. Guilfoyle S. M. Smith G. Wagner J. Mucci G. A. Huszti H. , & Mara C. A. (2019). Establishing clinical cutoffs for the PedsQL™ Epilepsy Module. Epilepsy & Behavior, 99, Article 106463. 10.1016/j.yebeh.2019.106463

Loiselle K. A. Ramsey R. R. Rausch J. R. , & Modi A. C. (2016). Trajectories of health-related quality of life among children with newly diagnosed epilepsy. Journal of Pediatric Psychology, 41(9), 1011–1021. 10.1093/jpepsy/jsw019

Marshall K. H. Pincus H. A. Tesson S. Lingam R. Woolfenden S. R. , & Kasparian N. A. (2022). Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: A systematic review. Psychology & Health, 39(4), 1–27. 10.1080/08870446.2022.2072843

Modi A. C. Junger K. F. Mara C. Kellermann T. Barrett L. Wagner J. Mucci G. A. Bailey L. Almane D. Guilfoyle S. M. Urso L. Hater B. Hustzi H. Smith G. Herrmann B. Perry M. S. Zupanc M. , & Varni J. W. (2017). Validation of the PedsQL™ Epilepsy Module: A pediatric epilepsy-specific health-related quality of life measure. Epilepsia, 58(11), 1920–1930. 10.1111/epi.13875

Narayanan U. G. Fehlings D. Weir S. Knights S. Kiran S. , & Campbell K. (2006). Initial development and validation of the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD). Developmental Medicine and Child Neurology, 48(10), 804–812. 10.1111/j.1469-8749.2006.tb01227.x

Ostendorf A. P. Axeen E. T. Eschbach K. Fedak Romanowski E. Morgan L. A. Gross P. Narayanan U. G. Glader L. Noritz G. , & the Cerebral Palsy Research Network . (2023). Epilepsy and proxy-reported health-related quality of life in children and young people with non-ambulatory cerebral palsy. Developmental Medicine & Child Neurology, 65(2), 200–206. 10.1111/dmcn.15336

Ostendorf A. P. , & Gedela S. (2017). Effect of epilepsy on families, communities, and society. Seminars in Pediatric Neurology, 24(4), 340–347. 10.1016/j.spen.2017.10.007

Ott D. Siddarth P. Gurbani S. Koh S. Tournay A. Shields W. D. , & Caplan R. (2003). Behavioral disorders in pediatric epilepsy: Unmet psychiatric need. Epilepsia, 44(4), 591–597. 10.1046/j.1528-1157.2003.25002.x

Palinkas L. A. De Leon J. Salinas E. Chu S. Hunter K. Marshall T. M. Tadehara E. Strnad C. M. Purtle J. Horwitz S. M. McKay M. M. , & Hoagwood K. E. (2021). Impact of the COVID-19 pandemic on child and adolescent mental health policy and practice implementation. International Journal of Environmental Research and Public Health, 18(18), Article 9622. 10.3390/ijerph18189622

Posner K. Brent D. Lucas C. Gould M. Stanley B. Brown G. Fisher P. Zelazny J. Burke A. Oquendo M. , & Mann J. (2008). Columbia-suicide severity rating scale (C-SSRS). Columbia University Medical Center.

Reilly C. Atkinson P. Das K. B. Chin R. F. Aylett S. E. Burch V. Gillberg C. Scott R. C. , & Neville B. G. (2014). Neurobehavioral comorbidities in children with active epilepsy: A population-based study. Pediatrics, 133(6), e1586–e1593. 10.1542/peds.2013-3787

Salpekar J. A. , & Mula M. (2019). Common psychiatric comorbidities in epilepsy: How big of a problem is it? Epilepsy & Behavior, 98, 293–297. 10.1016/j.yebeh.2018.07.023

Samanta D. Elumalai V. Desai V. C. , & Hoyt M. L. (2021). Conceptualization and implementation of an interdisciplinary clinic for children with drug-resistant epilepsy during the COVID-19 pandemic. Epilepsy & Behavior, 125, Article 108403. 10.1016/j.yebeh.2021.108403

Scheffer I. E. Berkovic S. Capovilla G. Connolly M. B. French J. Guilhoto L. Hirsch E. Jain S. Mathern G. W. Moshé S. L. Nordli D. R. Perucca E. Tomson T. Wiebe S. Zhang Y. H. , & Zuberi S. M. (2017). ILAE Classification of the epilepsies: Position paper of the ILAE Commission for Classification and Terminology. Epilepsia, 58(4), 512–521. 10.1111/epi.13709

Schoenberg M. R. Werz M. A. , & Drane D. L. (2011). Epilepsy and seizures. In Schoenberg M. R. & Scott J. G. (Eds.), The little black book of neuropsychology (pp. 423–520. Springer.

Strawbridge L. M. Schultz A. M. Liverman C. T. , & England M. J. (Eds.). (2012). Epilepsy across the spectrum: Promoting health and understanding. National Academies Press.

Tran L. H. , & Zupanc M. L. (2017). Neurocognitive comorbidities in pediatric epilepsy: Lessons in the laboratory and clinical profile. Seminars in Pediatric Neurology, 24(4), 276–281. 10.1016/j.spen.2017.10.002

Varkey P. Reller M. K. , & Resar R. K. (2007). Basics of quality improvement in health care. Mayo Clinic Proceedings, 82(6), 735–739. 10.1016/S0025-6196(11)61194-4

Vidaurre J. , & Twanow J. D. E. (2017). Attention deficit hyperactivity disorder and associated cognitive dysfunction in pediatric epilepsy. Seminars in Pediatric Neurology, 24(4), 282–291. 10.1016/j.spen.2017.10.009

Wagner J. L. Ferguson P. L. Kellermann T. Smith G. , & Brooks B. (2016). Behavioral health referrals in pediatric epilepsy. Epilepsy Research, 127, 72–77. 10.1016/j.eplepsyres.2016.08.017

Zack M. M. , & Kobau R. (2017). National and state estimates of the numbers of adults and children with active epilepsy—United States, 2015. Morbidity and Mortality Weekly Report, 66(31), 821–825. 10.15585/mmwr.mm6631a1