Negotiation of Individual and Collective Identities in the Online Discourse of Autistic Adults

Background:

Previous studies have shown an increasing preference for online communication within the autistic advocacy community. Yet, little is known about how online communication facilitates the formation of autistic identity. This qualitative study examined online autobiographical narratives about repetitive and restricted behaviors—specifically “stimming”—produced by autistic adults. The primary goal of this study was to investigate how the production of, and online interactions around, these narratives functioned as collaborative resources for empowered autistic identities.

Methods:

Nine blog posts were located that contained autobiographical narratives related to stimming and were analyzed using discourse analysis.

Results:

Analysis revealed that individual and collective identities were negotiated within narratives through: (1) situating the self in relation to other story characters and the reader in varying ways and (2) connecting the autistic community and solidifying collective ideologically aligned voices.

Conclusions:

Online blog spaces facilitated the emergence and construction of empowered individual and collective identities for autistic individuals. Future research should continue to focus on how autistic individuals form relationships, create advocacy communities, and cultivate empowered identities within online spaces.

Lay Summary

Why was this study done and what was the purpose of this study?

More autistic individuals are using the internet to communicate, and research has shown that online communication can benefit autistic individuals in various ways. However, there is a lack of understanding of how online communication is related to autistic identity. We examined how autistic bloggers' stories about their stimming experiences contributed to individual and collective autistic identities. Stimming refers to repetitive body movements, movements of objects, and other repetitive and restricted behavior and is considered one of two core features of an autism diagnosis. Although some stakeholders such as educators or parents have tried to get rid of these repetitive movements because they believe that stimming is not an appropriate behavior, autistic and other neurodiversity advocates assert that stimming is beneficial for autistic individuals and is important for developing an autistic identity.

What did we do?

We examined nine blog posts written by autistic bloggers using a method referred to as discourse analysis. In each blog post that we analyzed, the author shares their experiences about stimming. Discourse analysis is a method used to explore how people use language to build meaning, including the formation of social identities. Therefore, particular attention was paid to how the bloggers told the narrative (i.e., specific word choices to describe characters within the narrative and verb tense).

What were the results and implications of the study?

We found that by sharing stories about their stimming experience in the context of blog posts, autistic individuals developed empowered individual and collective autistic identities and challenged dominant and neurotypical social norms. Also, within online space, autistic individuals formed social relationships and connections that contributed to a collective identity. More research on how autistic individuals develop supportive relationships and form advocacy communities within online spaces is needed to promote emotional well-being and overall quality of life in this population.