PURPOSE. To depict what patients describe as patient participation and whether descriptions of patient participation are affected by gender, age, healthcare contact, and duration of disease.
DATA SOURCES. Current patients (n= 362) responded to a questionnaire on participation.
DATA SYNTHESIS. Patients' descriptions focused on having knowledge, rather than being informed, and on interacting with health professionals, rather than merely partaking in decision making.
CONCLUSIONS. Patients' descriptions of participation correspond with the International Classification of Functioning, Disability and Health's definition, which includes “being involved in a life situation.” Healthcare legislation and professionals employ a narrower concept of patient participation as defined by, e.g., Medical Subject Headings.
PRACTICE IMPLICATIONS. Findings suggest that health professionals need to embrace what patients describe as participation.
SYFTE. Att skildra vad patienter beskriver som patientdelaktighet och om beskrivningarna påverkas av kön, ålder, vårdkontakt och sjukdomens varaktighet.
DATAKÄLLA. Personer som var eller nyligen hade varit patienter (n= 362) svarade på en enkät om delaktighet.
DATASYNTES. Patienternas beskrivningar fokuserade på att ha kunskap, hellre än att bli informerad, och på att samverka med vårdpersonal, hellre än att enbart medverka i beslut om vård och behandling.
SLUTSATS. Patienters beskrivningar av delaktighet stämmer överens med definitionen i International Classification of Functioning, Disability and Health (ICF), vilken inkluderar “engagemang i en livssituation”. Hälso- och sjukvårdslagstiftning och vårdpersonal använder en begränsad betydelse av begreppet patientdelaktighet som beskrivs i t.ex. Medical Subject Headings (MeSH).
BETYDELSE FÖR PRAKTIK. För att skapa förutsättningar för patientdelaktighet behöver hälso- och sjukvårdpersonal beakta vad patienter beskriver som delaktighet.
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