See KahnP., “Coming to Grips with Genes and Risk,”Science, 274 (1996): 496–98.
2.
See WilfondB., “Cancer Genetic Susceptibility Testing: Ethical and Policy Implications for Future Research and Clinical Practice,”Journal of Law, Medicine & Ethics, 25 (1997): 243–51.
3.
See Task Force on Genetic Information and Insurance, National Center for Human Genome Research, Genetic Information and Health Insurance (Bethesda: National Institutes of Health, 1993).
4.
See Wilfond, supra note 2, at 248.
5.
See HoskinsK.F., “Assessment and Counseling for Women with a Family History of Breast Cancer,”JAMA, 273 (1995): 577–85.
6.
See BieseckerB.B.BoehnkeM.CalzoneK., “Genetic Counseling for Families with Inherited Susceptibility to Breast and Ovarian Cancer,”JAMA, 269 (1993): 1970–74.
7.
See Wilfond, supra note 2, at 243.
8.
See RimerB.K.SchildkrautJ., “Cancer Screening,” in DeVitaV.T.HellmanS.RosenbergS.A., eds., Cancer: Principles and Practice of Oncology (Philadelphia: Lippincott-Raven, 5th ed., 1997): Ch. 25.
9.
See MotulskyA.G., “Screening for Genetic Diseases,”N. Engl. J. Med., 336 (1997): 1314–16.
10.
See RimerSchildkraut, supra note 8, at 619.
11.
See KramerB.S., “The Screening Editorial Board of the Physician Data Query: NCI State of the Art Statements on Cancer Screening” in GreenwallP.KramerB.S.WeedD.L., eds., Cancer Prevention and Control (New York: Marcel Dekker, 1995): 719–22.
12.
See, for example, CollinsF.S., “Statement on the Use of DNA Testing for Presymptomatic Identification of Cancer Risk,”JAMA, 271 (1994): 785; and American Society of Clinical Oncology, “Statement of the American Society of Clinical Oncology: Genetic Testing for Cancer Susceptibility,”Journal of Clinical Oncology, 14 (1996): 1730–36.
13.
See SchulmanJ.D.SternH.J., “Genetic Predisposition Testing for Breast Cancer” (visited Feb. 18, 1998) <http://www.givf.com/cancer_Journal1.html> (reprint from The Cancer Journal (1996)).
14.
See Myriad Genetics, A Corporate Commitment to Responsible Genetic Testing (visited Oct. 14, 1996) <http://www.myriad.com/Commitment>.
15.
Id. at 1.
16.
See HubbardR.LewontinR.C., “Pitfalls of Genetic Testing,”N. Engl. J. Med., 334 (1996): 1192–94.
17.
For example, Myriad Genetics, OncorMed, and Genetics IVF Institute.
18.
See RosenbergS.A., “Secrecy in Medical Research,”N. Engl. J. Med., 334 (1996): 392–94.
19.
See KodishE.WhitehouseP.MurrayT., “Conflict of Interest in University-Industry Research Relationships: Realities, Politics and Values,”Academic Medicine, 71 (1996): 7–10.
20.
See FletcherS.W., “Whither Scientific Deliberation in Health Policy Recommendations?,”N. Engl. J. Med., 336 (1997):1180–83.
21.
See ChodakG., “Prostate Cancer: To Screen or Not to Screen,”Acta Oncologica, 30 (1991): 285–87.
22.
See KodishE., “Genetic Testing for Cancer Risk: How to Reconcile the Conflict,”JAMA, 279 (1998): 179–81.