Abstract
This study examined the relational factors influencing school engagement for parents of high school youth with emotional/behavioral disorders. Fourteen parents of high school students (12 mothers, two fathers) who received special education services participated in semistructured interviews. Formal qualitative analyses of audiotaped phone interviews revealed some positive and some negative experiences by parents, the importance of coparenting to increase supportiveness to their child (and dimensions of effective coparenting), and recommendations from them for improving family engagement processes. In general, parents appreciated and recommended proactive and positive communication and collaboration with school staff emphasizing student strengths, being genuinely and meaningfully involved in the Individualized Education Program (IEP) process, with adequate time allowed for this involvement, and for staff to be organized and engaged in working with them. Findings are discussed in relation to ideas for practice and policy enhancement, and future research directions.
Keywords
Advances in evidence-based practices in education and child and adolescent mental health programming identify family–provider partnership as critically important for student success, health, and well-being (Weist, Garbacz, Lane, & Kincaid, 2017). Yet, involving families of youth with emotional/behavioral (EB) disorders in youth-serving systems remains a challenge (K. Hoagwood, Burns, Kiser, Ringeisen, & Schoenwald, 2001; Huscroft-D’Angelo, January, Duppong, & Hurley, 2018). According to the U.S. Department of Education (USDOE), National Center for Education Statistics (2018), nearly 350,000 students were provided services for EB disorders in the 2014–2015 academic year. Even with additional school-based services, students with EB disorders have lower academic achievement and higher dropout rates than students with any other disability (USDOE, Institute of Education Sciences, 2014).
Current policies, such as the Every Student Succeeds Act (ESSA; 2015), mandate that schools engage families in their school community. However, in general, schools are not following these mandates, with family participation in the school environment limited or almost nonexistent in most schools (Huscroft-D’Angelo et al., 2018; Mapp, 2012; Weist et al., 2017). Furthermore, the strategies for promoting parent–school partnership may vary when considering the involvement of parents with youth who do not face typical educational experiences, such as youth presenting more serious EB problems. Effectively partnering with families to provide resources and skills when families experience increased challenges due to their child’s EB experience is especially important, given the multiple barriers that these families may face in engaging with schools (e.g., variable work schedules, reliable transportation, family stressors). Evidence suggests that these barriers are particularly intense for high school youth and their families (Kern, Evans, Lewis, Weist, & Willis, 2015). An examination of the barriers and facilitators of family involvement in school for parents of high school youth with more serious EB problems receiving special education services is needed to facilitate the implementation of best practices for them and for the improvement of school policies. Therefore, the current article examines parent perceptions of their school engagement among parents of high school–aged youth experiencing challenging EB problems and academic difficulties.
Youth With EB Disorders
The prevalence rates of mental health problems among children and adolescents in the United States vary but range upward of 25% (Ghandour, Kogan, Blumberg, Jones, & Perrin, 2012), with approximately 20% of adolescents having a diagnosable mental health problem and 10% having an EB disorder severe enough to impair daily functioning at home, school, or in social settings (Merikangas et al., 2010). Approximately 6% of students aged 6 through 21 years are served under the Individuals with Disabilities Education and Improvement Act (IDEA) category of “Emotional Disturbance” (Forness, Freeman, Paparella, Kauffman, & Walker, 2012). (Note that although IDEA utilizes this classification, students, families, and other stakeholders view the term as pejorative; J. Walker, Geddes, Lever, Andrews, & Weist, 2010). Indeed, EB problems are well-documented barriers to student academic success (Flisher et al., 1997; Smith, Poling, & Worth, 2018; Vander Wal & Mitchell, 2011; Wyatt, Winters, & Dubbert, 2006). Nearly half of the students with EB disorders are educated within general education classes 80% or more of the school day; yet, they are less likely to achieve school success than any other subgroup of students, with or without disabilities (Landrum, Tankersley, & Kauffman, 2003). Although youth with EB disorders exhibit challenging behaviors that interfere with their ability to perform academically and socially in school (Landrum et al., 2003; Smith et al., 2018), they may not be identified in the educational system as having needs indicating special education services (Moreno, Wong-Lo, & Bullock, 2014). In fact, adolescents with EB disorders are at the greatest risk of academic problems including earning low grades, failing classes, experiencing grade retention, and high rates of absenteeism in comparison with students with other disabilities (Bullock & Gable, 2006; Davis, Young, Hardman, & Winters, 2011; Wagner, Kutash, Duchnowski, Epstein, & Sumi, 2005; Wagner, Newman, et al., 2006).
Education is the only mandated youth-serving system to support youth presenting EB disorders, and, in general, efforts are failing with about half of these students dropping out of school (USDOE, Institute of Education Sciences, 2014; Vander Stoep, Weiss, Kuo, Cheney, & Cohen, 2003). Federal policies such as ESSA (2015) charge schools with accommodating students with disabilities to ensure their access to free, appropriate public education (FAPE). A major goal of ESSA is to ensure FAPE for eligible students with disabilities that is provided in conformity with the Individualized Education Program (IEP) as in the earlier IDEA (see 20 U.S.C. § 1401). One of the major procedural requirements specified in the IDEA is providing full and meaningful participation of parents in their child’s education. IDEA requires that state and local education agencies “ensure that children with disabilities and their parents are guaranteed procedural safeguards with respect to the provision of free appropriate public education by such agencies” (20 U.S.C. § 1415 a). Thus, parents are not only invited to participate in all aspects of their child’s education but also granted specific rights, including the right to participate in the identification, evaluation, and educational placement of their child, examine records, and legally question a school’s decisions.
Parent Engagement
Parent involvement in schools is fundamental to education reform (Weiss et al., 2011) and has become a key component of major federal initiatives to improve U.S. schools including the No Child Left Behind Act (2002), the President’s Commission on Excellence in Special Education (2002), and the more recent ESSA (2015). The USDOE has prioritized family–school partnerships in recent years through the development of a family and community engagement framework for family–school partnerships for families, schools, districts, and states to build capacity for student achievement and school improvement (Ferrara, 2017; USDOE, 2014). In addition, the national center for Positive Behavioral Interventions and Supports (PBIS), funded by the Office of Special Education Programs, has a major emphasis on significantly improving family engagement and partnerships in schools, as reflected in a recently disseminated e-book (Weist et al., 2017). Furthermore, the PBIS national center is providing support to the newly developed Family–School–Community Alliance, which aims to improve family and youth leadership within multitiered systems of support through interconnected advancements in research, practice, and policy (see www.fscalliance.org).
Despite increased efforts from federal, state, and local education policymakers, as well as administrators and parents, to highlight the significant distress that youth with EB disorders and their families experience, systems continue to treat these students and their families poorly (Huscroft-D’Angelo et al., 2018; Kern et al., 2015). Building the capacity of schools to comprehensively support students’ EB disorders and school functioning, matriculation, and graduation has become a national priority, with schools partnering with mental health systems to expand and improve the depth and quality of programs and services (Weist, 1997; Weist, Lever, Bradshaw, & Owens, 2014). Although parent involvement is championed as critically important for achieving student success—including decreasing school dropout rates—for students with disabilities, little is known specifically about the extent to which families of youth with EB disorders are involved in school (Wagner, Newman, Cameto, Javitz, & Valdes, 2012; Zhang, Hsu, Kwok, Benz, & Bowman-Perrott, 2011).
Hill and Taylor (2004) suggested two major mechanisms by which parental school engagement promotes achievement: increasing social capital (i.e., enhanced parenting skills and information allows parents to better assist their children in school-related activities) and increasing social control (i.e., establishing consensus between school and parents about appropriate behavior that is further communicated to children in both home and school settings). Fan and Chen (2001) conducted a meta-analysis that showed that parental expectations and aspirations have a stronger relationship with student academic achievement than direct home supervision (e.g., time spent doing homework). Moreover, student perceptions of their parents’ values about achievement were strongly related to both motivation and competence (Marchant, Paulson, & Rothlisberg, 2001). However, even though traditionally defined parental involvement (e.g., homework help, school volunteering) has little direct influence on student academic achievement, such parental engagement activities help prevent children’s behavioral problems (Domina, 2005). Moreover, parent engagement has been linked to students having more consistent school attendance (Falbo, Lein, & Amador, 2001) and demonstrating increased behavioral and academic performance in school (Finn, 1998; Gonzalez, 2002; Simon, 2001; Van Voorhis, 2001). Thus, parental engagement in school increases indicators of student engagement in school, a critically important variable identified and targeted in academic and behavioral interventions for youth with EB disorders (Appleton, Christenson, Kim, & Reschly, 2006).
However, in examining the impact of work–family responsibilities of 41 parents of children with an EB disorder, Rosenzweig, Brennan, and Ogilvie (2002) found that parents reported frustration with school administrators and teachers in developing effective interventions for working with their child with an EB disorder. In regard to community and school-based services, parents reported that these systems did not make accommodations to their work schedules, and required adjusting work schedules for IEP meetings and leaving work immediately if their child was in crisis. Parents of children with EB disorders reported limited flexibility from their employer, child care providers, and school systems in meeting the needs of their child (Rosenzweig et al., 2002). In a study examining supportive services for parents and students with EB disorders in rural communities, 85% of the school administrators interviewed reported having no parent supports offered by their school districts (Huscroft-D’Angelo et al., 2018). In addition, Wagner, Friend, et al. (2006) reported that only 10.4% of high school students with an EB disorder received family support, and more family support services were provided in elementary and middle schools (18.1%) than high schools. It is not yet clear what supports parents might need to become more engaged with their child’s schools. Although parent engagement is noted as important for academic success, empirical research on strong parent–school engagement through collaborative family partnerships for students with EB disorders is lacking (Lane & Carter, 2006; Simpson, Peterson, & Smith, 2011).
Coparenting
The effects of parenting style may also influence behavioral outcomes for children with EB disorders. Amato, Kane, and James (2011) outlined three parenting styles and their impact on children: cooperative parenting (coparenting, shared parenting responsibilities), parallel parenting (guardians who parent independently of the other guardian with separate rules), and single parenting (one guardian is responsible for all parenting). Parents involved in a coparenting relationship reported higher satisfaction and lower conflict than parents engaged in single parenting or parallel parenting (Amato et al., 2011). Choi, Parra, and Jiang (2019) found that coparenting was significantly correlated to lower behavioral problems for children from low socioeconomic status and unmarried families. In addition, parents who understand each other’s strengths in handling a given situation, and utilized social supports when available, demonstrated better overall family adjustment (Daire, Gonzalez, & O’Hare, 2017). Moreover, coparental support increases social capital, which is a factor in parents’ school engagement (Hill & Taylor, 2004). Although the benefits of coparenting have been examined, we could not find any research to support the benefits of coparenting for children with EB disorders specifically, or the influence coparenting may exhibit on parental engagement.
The aim of this exploratory qualitative study was to examine the relational factors influencing parents’ school engagement for their high school youth with EB problems. In particular, we sought to understand how school staff behaviors and family communication (parent–child and interparental) act to promote or inhibit parents’ engagement in school. We focused on high school youth because of the impending transition out of high school, the scarce family resources provided at high school compared with elementary and middle school (e.g., Wagner, Friend, et al., 2006), and the scant literature addressing family engagement for high school students. Furthermore, in noting high dropout rates for students with EB disorders, previous researchers found that transition to adulthood is improved if a high school degree is obtained, including lower unemployment rates (Aud, KewalRamani, & Frohlich, 2011; Wynne, Ausikaitis, & Satchwell, 2013). Wynne et al. (2013) surveyed 34 parents of adult children who had been diagnosed with an EB disorder and found that only one third of parents reported that their children were “successful” in adulthood as defined by postsecondary education, employment, and independent living, with only 11.8% of the students with EB disorders obtaining a college degree.
By providing an in-depth description of the relational context, we hoped to inform systematic school efforts aimed at increasing parent engagement for those youth who are at highest risk of poor educational outcomes. The current study was guided by the following research questions:
Method
Participants
Participants included 14 parents (mothers: n = 12; fathers: n = 2) of adolescents with an IEP identified by schools as having significant EB problems impairing their school success. Upon completion of participation in a larger clinical research trial for families of high school students presenting with EB problems (see Kern et al., 2015), parents opted to be contacted for a follow-up study related to their experiences with parental engagement in the schools. Parents lived in a southeastern region of the United States and had an adolescent who recently attended a high school participating in the larger research trial (n = 9). Twenty-nine percent of the sample reported a median family income of less than US$40,000 (n = 4), 43% reported an income range of US$40,000 to $60,000, 21% reported an income range of US$60,000 to $80,000, and one participant chose not to disclose. The majority of participants were married/common law spouse (n = 9, 64%), two were never married, two were widowed, and one was divorced. Adolescents were primarily male (n = 10, 71%), attended a high school while receiving interventions for youth with EB disorders (n = 9, 60%), and half the sample was Caucasian (n = 7, 50%), 43% were African American (n = 6), and one adolescent was Asian. The majority of adolescents had a primary disability on their IEP labeled as “Other Health Impairment” (n = 8, 57%); the remainder of the adolescents were labeled as having an “Emotional Disturbance” (n = 3, 21%) or a “Specific Learning Disability” (n = 3, 21%).
Procedure
All study procedures were approved by the university’s institutional review board and carried out according to the ethical principles of human subjects’ research. As mentioned, participants in the current study were recruited from a larger randomized controlled trial—the Center for Adolescent Research in Schools (CARS) project, funded by the Institute of Education Sciences (see Kern et al., 2015). The larger research study developed and evaluated school-based interventions for high school students identified by school personnel as having behavioral and emotional difficulties that affect their academic and social success in school. Specific inclusion criteria for the larger study were as follows: (a) high school students in ninth to 12th grades; (b) having experienced social, emotional, or behavioral problems as indicated by a parent, student, or teacher report on a broad rating scale; and (c) students demonstrating school impairment in any two of the following areas—absences other than illness and/or tardies, office referrals/behavioral infractions, in-school or out-of-school suspensions, or grades. Parents and teachers assessed student social/emotional functioning through the Behavior Assessment System for Children–Teacher or Parent Version (BASC; Reynolds & Kamphaus, 2004). Student criteria for the larger study were met through a t score of 60 or higher on either internalizing or externalizing composites of the BASC, 60 or higher on the Multidimensional Anxiety Scale for Children (MASC; March, Parker, Sullivan, Stallings, & Conners, 1997), or 60 or higher on the Reynolds Adolescent Depression Scale 2 (RADS; Reynolds, 2002).
A research team member called parents of students from the larger study to describe the current follow-up study, address questions and concerns, and inquire about their participation. A written consent form was sent to parents who agreed to participate. Study investigators developed the interview protocol and semistructured questions (see the appendix). Phone interviews were conducted by two of the study investigators and one master’s-level research assistant. Parents were mailed a gift card incentive of US$50 for their participation upon completion of the interview.
The semistructured interviews contained open-ended questions about parents’ experiences of involvement in their child’s special education services, as well as their perceptions of the factors at school and home that promoted or inhibited their school involvement. We developed research questions to understand parents’ experiences (a) with school personnel, (b) during the IEP process, (c) discussing the IEP with their child, and (d) surrounding parent-relational issues. The interview questions were guided by the study research questions. Interviews lasted an average of 30 min (range from 20–60 min). Interviews were audiotaped and transcribed verbatim. We used NVivo 10 software to organize study interviews and facilitate the analytic process.
Data Analysis
We utilized a phenomenological qualitative methodology in the current study to understand participants’ overall experiences with school engagement as it relates to their child receiving special education services. The qualitative analysis proceeded in three overlapping phases. In the first phase, the research team conducted open coding, which Strauss and Corbin (1990) described as that which “fractures the data and allows one to identify some categories, their properties and dimensional locations” (p. 97). We began this phase by applying analyst triangulation (Patton, 1999). After reviewing coding procedures together, two of the advanced researchers coded several transcripts independently, assigning labels to sentences and phrases to capture their underlying meaning and the essence of the participants’ experiences. Two additional researchers reviewed the coded transcripts, and the team met to compare and contrast individual interpretations. The research team continued to meet regularly to review the codes using the constant comparative method, in which we compared sentences and phrases within each code to determine their conceptual similarity and distinctness from other codes (Larossa, 2005). Once the final list of open codes was established, we proceeded to the second phase, axial coding. In this phase, the research team related the codes to each other, using a process of inductive and deductive reasoning to group codes into broader themes and search for causal relationships between coded concepts. In the third and final phase, we related the themes back to our original research questions.
In addition to triangulation, we utilized the process of disconfirming evidence and researcher reflexivity to help ensure the trustworthiness of findings (Creswell & Miller, 2000). The research team comprised a diverse group consisting of faculty from social work, psychology, counseling, and special education. Thus, each team member viewed participant responses through the lens of their training and experiences with the population. The research team met regularly to review the emerging codes and themes, with open and transparent conversations about perspectives and interpretations. We created analytic memos during each meeting. We discussed any perceived biases about the qualitative responses in light of each researcher’s positionality.
Positionality
As mentioned above, the researchers represent a diverse group of related disciplines, as well as faculty who were tenured, tenure track, doctoral students, and master’s level students. Researchers compromised men and women ranging from various cultural backgrounds. As such, researchers’ positionality varied. However, each member of the research team had either previous clinical experiences working with parents/families of children with disabilities, or as special education teachers. For example, two team members are trained and licensed to practice psychotherapy and have experience providing therapy to families of children with disabilities, as well as families with low income. Two other team members worked as school psychologists. In addition, members of the research team have been conducting research on families and children with EB disorders for several years. These collective clinical and research experiences contributed to discussions of the research questions, interview questions, and data analysis. For example, many participants in the current study lived in rural areas of a southeastern state. Research team members’ previous clinical and research experiences with this population contributed to biases about the stressors these families may face that might prevent them from being engaged in their child’s education, such as transportation issues, job flexibility, and other issues of access. Thus, we discussed these, and other issues at length prior to conducting interviews.
Results
In this study, we aimed to understand parents’ perceptions of the ways that family relationships and school staff behaviors influenced parental engagement in high school special education services. With regard to family relationships, parents talked about their parent–child relationship and their coparenting relationship. They also described their experiences with school staff, both in the IEP meetings and throughout day-to-day school life. Along the way, they also described the nature of their involvement in their child’s special education services. Our results are presented as conceptual themes that are supported with categories and representative quotes to best capture parents’ collective experiences. We present each theme, along with a brief summary describing the theme, and then the supporting categories and direct quotes for each theme. We begin by summarizing the types of school engagement that parents in this study used. Next, we present the themes within the topical areas that guided our research questions (school staff behaviors, IEP process, coparent relationship, and parent–child relationship).
Parents’ View of Engagement
At the outset of this study, we conceptualized greater parent engagement as inherently positive. Our conceptualization of parent engagement was based largely on prior research (e.g., Domina, 2005; Falbo et al., 2001) indicating greater engagement is associated with fewer behavioral problems. However, for some of the parents in this study, more school involvement was not necessarily better. In many cases, parents chose to become more engaged in school because of their child’s academic and behavior problems. As one mother shares, “I wish I was less involved- you know- obviously that means less that he’s messing up” (Parent 01). Some parents were also motivated to become more engaged because they perceived that the school was failing their child in some way. “I am heavily involved in K’s IEP, because . . . I had to become an advocate for my child, because the (school district) did a horrendous job of making certain that his accommodations were met” (Parent 05).
The parents in this study varied widely in the amount and nature of their school engagement. We summarize these types of school involvement to provide a necessary context for interpreting the factors that influence parents’ engagement. During IEP meetings, parents asked questions, suggested goals, advocated for additional supports, and tried to be a voice for their child’s needs. At home, they monitored their child’s academic progress, explained their child’s rights to them, helped with homework, and worked to prepare their child for upcoming IEP meetings. Most parents strove to have regular communication with teachers over the phone and by email. They offered support to teachers when challenging behaviors were occurring in the classroom and held teachers accountable when they believed their child was not receiving adequate support.
Daily School Staff Behaviors That Contribute to Parent Engagement
Here, we present a theme to describe the differences in school staff behaviors that parents reported. The categories from this theme distinguish between those behaviors that occurred during the formal IEP meetings from those that occurred during the day-to-day of the school year.
Frequent and proactive communication with parents
Most parents in the study reported that their children did not often provide consistent or truthful information about their experiences at school. Therefore, parents especially appreciated when school staff took the initiative to contact them before a problem with their child became serious. As one mother describes, They’ll call, they’ll call and ask . . . if I have any questions about anything, and they ask how he’s doing, how I think he’s doing, and they’ll tell me what he’s doing in class and stuff, or not doing . . . (Parent 12)
Parents shared appreciation for this proactive communication because they could address issues with their child before being reflected on a permanent record (e.g., poor grades on a report card).
Parents were also grateful when school staff contacted them to share good news about their child. Most parents had grown so used to hearing bad news that they came to dread the sound of the phone ringing during the daytime. These positive calls were a welcome surprise and provided parents with renewed motivation and hope. Several parents also described their satisfaction with teachers who sent weekly email updates on their child’s performance. This kind of frequent communication helped parents feel informed and aware of how they could help. It is important to note that this frequent and proactive communication did not necessarily increase parents’ behavioral engagement in school. In some cases, when parents felt more informed, they were less likely to intervene in school.
Communicating care and concern for my child
Parents frequently described school staff who knew about their child’s unique strengths and needs, and who communicated genuine care and commitment to their child’s success. As one mother described, Ya know, I think its just that they come off as genuinely being concerned about the student. Uhm . . . genuinely concerned about how she is doing in the day. Uhm . . . I think that when they connect emotionally with her, then she does better academically. Because then she tries a little harder. (Parent 03)
Parents seemed particularly sensitive to teachers’ expectations for their child and level of enthusiasm for helping their child learn. Teachers’ high expectations were motivating for both the students and parents. As one parent reflects, “With those teachers that really strive to make an effort to connect with her, she does better in those classes. Uhm its almost, she’s trying to meet their expectations a little better” (Parent 03). In contrast, several parents related instances when they felt that low expectations from school staff became a self-fulfilling prophecy for their child. As another parent explains, . . . they [the teachers] played a big role into whether he did well or not because they pretty much got what they expected. If they expected good, they got good. If they expected bad, he was going to give them a dose of that. (Parent 09)
Bringing parents into the inner circle
This theme captures parents’ desire to understand school staff members’ rationale for their recommendations and decisions. In some instances, parents felt that school staff curtly stated their opinions about where the student should be placed without explaining their rationale or seeking input from parents. Instead, parents wanted school staff to take the time to explain their reasons for their decisions and the process by which they arrived at them. They wanted school staff to be patient with parents and help them understand the IEP process, so they can participate equally in decision making. As one mother put it, You don’t want the people in charge to pick your child out, “well this is the program he has to be in.” You explain to them why you feel that child or those children need to be in this program—and if you sit down and you do that—you will get the parent to understand. It’s not disrespect or degrading your children, but it’s to make sure that their education is on the right level, and they’re getting what they need. (Parent 08)
As this quote illustrates, when parents truly understand the reasoning behind school decisions concerning their child, they are less likely to become defensive and more likely to support a course of action that is in their child’s best interests.
Follow through on accommodations in IEP
Parents described the need to become more engaged if they perceived the IEP accommodations were not being met for their child.
I am heavily involved in K’s IEP, because . . . and the reason I had to become that, I had to become an advocate for my child, because (School District) did a horrendous job of making certain that his accommodations were met. (Parent 05)
This parent described eventually switching school districts and reported believing the new district cared more because they followed up and followed through on the IEP accommodations. Some parents described school personnel, who doubted the need for the students’ accommodations, creating a sense of mistrust between the parent and school. This mistrust led to greater advocacy and engagement on behalf of the parent.
Professional Behaviors During the IEP Meeting
Parents described the IEP meeting as an intimidating process in which they did not feel their perspective mattered. Parents provided some specific examples of things school personnel did that made the IEP meeting a more positive experience, thus improving their perception of involvement. Therefore, this overall theme, and supporting categories, underscore how parent engagement can be influenced by parents’ perspective of the IEP meeting structure.
Student-centered and family-centered meeting
Parents stated that allowing time for them to speak, as well as their child, provided a more positive experience. Furthermore, school personnel who emphasized strengths, rather than deficits, created a more caring perception and less like the IEP was a formal process that was a disruption for those who had to attend. One parent explained, “It’s just a lot of pressure. You feel like—you know—you can only keep them in there for so long, because they start looking at their watches and looking at their computer; and you know, it’s intimidating you know” (Parent 14). Although school personnel may have several IEP meetings scheduled, maintaining a sense of flexibility to accommodate the unique discussion centered around the parent and child helped parents feel like the meeting was student and family centered.
Develop goals collaboratively
Parents described desiring meetings that felt personalized, and not standard, or “cookie-cutter.” Furthermore, they suggested that decisions should be made with parents and students collaboratively, not beforehand. As such, an IEP meeting that focused on the development of goals, rather than informing parent/child about the goals, appeared more tailored to the student and parents’ needs, and created a collaborative environment that facilitated greater buy-in from both parent and child. One parent stated, It seemed like basically the process was all they asked of us was to attend the meetings and to sign the paperwork and . . . uhm . . . they asked for input but, or they asked us questions but didn’t necessarily include or utilize our input. (Parent 13)
Thus, merely asking questions did not appear to be enough to create a collaborative environment. However, questions that elicited meaningful parental contribution to the goals appeared important.
Staff are organized
School personnel who prepared for the meeting and had materials available upon parent arrival created a professional environment. One parent described such an experience, Everybody at that table was engaged, and everybody had favorable things to say about my son. And, that’s not to say that they’re good because saying favorable things, but I was just in such shock, I was like “oh my god.” I mean, is this it? It was the smoothest meeting. I didn’t have to ask for a handbook; it was provided. They had notes; I could see the notes . . . I mean, they were just very, very professional. (Parent 05)
This parent highlighted the importance of preparing before the meeting and involvement from each staff member at the table.
Coparent Relationship
The majority of parents in the study were involved in a coparenting relationship. That is, they shared parenting responsibilities with another adult (McHale, Lauretti, Talbot, & Pouquette, 2002). It is important to point out that coparents were diverse and included a grandfather, spouses, ex-spouses, and a daughter who had children the same age. Parents described three dimensions of this coparenting relationship that influenced their involvement in their child’s education: coparent support, shared beliefs about student’s needs, and division of school-related labor. Therefore, this theme encapsulates the unique contribution of the coparent relationship to school engagement.
Coparent support
We use the phrase coparent support here to capture parents’ efforts to bolster each other’s effectiveness at communicating with their child and school staff. Several parents described their efforts to keep each other informed about what was happening at school. As one mother describes, “What another thing about me making copies about the correspondence is, is that I was bringing it in the door and before I even addressed with (student), I would show it to him (father) too” (Parent 09). Parents also supported each other by “backing each other up” (Parent 09) on decisions they made related to their child’s education. In particular, several parents described their intentional efforts to present information and disciplinary decisions to their child in a united way.
Shared beliefs about student’s needs
Another dimension of coparent relationships that influenced parent involvement was the degree to which parents held similar beliefs about the student’s disability, needs for school accommodations, and the best parenting strategies to help their child succeed. When parents agreed about how to handle their child’s schoolwork at home, they were able to support each other in tasks such as delivering discipline, tracking school progress, and helping their child prepare for IEP meetings. Conversely, when parents disagreed about these tasks, they tended to argue and undermine each other’s efforts. One mother described these differences in belief between her and her husband when their son failed to complete school work: I’m more of a rescuer . . . That’s kinda why we’re not on the same page . . . he’s more of the enforcer- more of the stricter part of it- I tend to be like I said the one that kind of tends to baby him and save him . . . (Parent 01)
Parents agreed in some areas and not others. As one mother notes, Well, we’re on the same page as far as . . . uh . . . the accommodations they’re giving him, so on and so forth, but we’re not on the same page as . . . uh . . . my husband understanding his condition. (Parent 01)
In this case, although both parents supported each other during school IEP meetings, they were at odds in their approach to helping the child with homework at home.
Division of school-related labor
Parents described how the nature and amount of one parent’s involvement in school was strongly related to the other parent’s involvement. In some circumstances, parents mutually divided tasks such as communicating with teachers, checking their child’s grades online, helping with homework, and attending IEP meetings. For example, one mother described how her husband suffered from posttraumatic stress disorder (PTSD) and was unable to enter into the crowded school building to physically attend IEP meetings. In their case, she attended IEP meetings, and he took the lead on electronic communication with the school. Another mother coparented with her eldest daughter, who had children the same age. They attended IEP meetings together and frequently talked about her son’s accommodations and school performance.
In other cases, the division of tasks was not mutual. One mother described her frustration over trying to get her daughter’s father, who did not live in their home, to become more involved in her education and emphasize it more when they are together: Her dad might get on her about that stuff or he might not because you know like the lifestyle that he lives and stuff the things he does, of course that’s what he chooses but that’s why I think he should sit down and tell her . . . I thought their father would want to protect them more. (Parent 11)
The way parents divided school-related labor was related to their supportiveness and shared beliefs, and directly affected their overall level of engagement as well as their satisfaction with their school engagement.
Parent–Child Relationship
The relationship between parent and child influenced parental involvement, and is, therefore, explained through this theme. Parents described the challenges associated with their child accepting special education services. Parents also described challenges to communicating with their child about school performance.
Youth’s acceptance of special education services
Some parents stated their child struggled to accept their involvement with special education. The IEP meeting represented a reminder of those services and contributed to increased child agitation the day of the meeting. According to one parent, I just know that the day of the IEP meeting I was limited to my input in it because K’s a person who get really upset very, very easy, and it takes a while to bring it down so that’s the only thing [with] the IEP meeting. I was very limited to my input in it because I know how upsetting IEP meant to K. (Parent 08)
In this case, the child’s negative perception of the IEP contributed to more passive involvement from the parent as this parent did not want to further upset the youth.
Youth’s communication about school
Parents also described challenges in communicating with their child about school behavior or school achievement. Parents stated their child was not always honest, or open, about things occurring at school and that communicating with school personnel was even more important to gain an accurate picture of how the child was performing in school. As one mother describes, He said he didn’t have homework, um . . . so how I found out he was failing was . . . uh . . . when the school psychologist contacted me . . . he’s the one who actually said, “well, do you know (student) is, you know, failing every class?” And at that time I really, truthfully had not checked. (Parent 01)
Regular communication with school personnel not only encouraged parents to check in with their children about school-related issues but also helped parents discern facts from fiction.
Discussion
Family engagement and involvement in schools, particularly surrounding issues of student mental health is associated with positive outcomes related to factors such as improved school attendance, more consistent follow-up on decisions made at meetings, and improved student connectedness to school, which is a powerful resilience factor (Chorpita, Daleiden, & Weisz, 2005; Weist et al., 2017). This qualitative study involving interviews with 14 parents (12 mothers, two fathers) of high school students receiving special education services related to EB disorders revealed a number of themes useful for advancing effective practice and policy to improve services for these students and their families. Parents described a number of positive experiences with special education and IEP processes, including appreciating outreach by school staff, proactive and positive communication, when staff showed genuine concern, when they held high expectations for their child, and when the IEP meetings appeared organized and included meaningfully sought parental input.
Family engagement scholars identified four primary areas for school personnel to address that may enhance family involvement: (a) engagement, (b) collaboration, (c) support, and (d) empowerment (K. E. Hoagwood, 2005; McKay & Bannon, 2004). Findings from our study are consistent with these recommendations. Parents in our study who reported regular, proactive, communication from school personnel described feeling less of a need to advocate for their child. In addition, parents also expressed a number of concerns about special education processes including feeling the need to be involved because programs were failing, staff acted curt and impatient, their children were not being open about what was happening at school, and feeling generally intimidated by the IEP process. Finally, parents had a number of specific recommendations for schools to improve special education processes including emphasizing their child’s strengths, allowing them time to speak, being flexible and allocating adequate time for meetings, collaboratively developing goals, and staff being organized and engaged in the meetings.
Findings from our study on school engagement are unique in that parents discussed issues related to coparenting, which has not yet been considered in previous family engagement research. Notably, when both parents had shared beliefs about their child’s needs, they were better able to collaborate in helping their child. Conversely, differences in beliefs were associated with arguing and undermining each other’s efforts. Participants emphasized the benefits of “division of labor” to help their child with school-related functioning. Such statements are consistent with conceptual components of coparenting (Hock & Mooradian, 2013) and positive coparenting practices (Amato et al., 2011; Kirkland et al., 2011). Parents, who support each other and perceive themselves to have adequate resources to address challenges (i.e., social capital), may be better equipped to support their children at home and help their child achieve IEP goals. School administrators who aim to increase family engagement should also consider strategies to support coparents, such as (a) a resource-sharing session, (b) support groups that offer parents an opportunity to share experiences with other parents, or (c) educational sessions that not only discuss parenting strategies but also include communication skills and positive relationship skills.
Parents also discussed communication with their children and its influence on engagement. Some parents reported not being able to trust the information they received from their children, or that their children did not fully disclose information. These parents reported having to follow-up with the school to verify information. The parent–child relationship’s influence on engagement may also be connected to parental stress and parental empowerment. Previous research identified links between parenting stress and raising a child with mental health needs (Webster-Stratton, 1990). Furthermore, increasing parental empowerment lowers parenting stress (Bode et al., 2016). Empowerment describes a parent’s perception of his or her role and ability to navigate services on his or her child’s behalf. For example, parents who engage their children in discussions about school-based behavior, and their IEP progress, may either limit or increase their advocacy efforts with the school depending upon the type of dialogue they have with their children, or how much they trust what their child tells them. Therefore, it may be important to understand that a parent who makes fewer contacts with school personnel is not necessarily less engaged, but may be demonstrating engagement through conversations with his or her child.
Limitations
The results of this study should be considered in light of limitations regarding the transferability and trustworthiness of the findings. First, parent participants were recruited from a larger clinical research trial for families and high school students presenting EB problems. This recruitment strategy may have resulted in “high participating” families whose engagement is qualitatively different from others. In addition, their previous experience may have shaped their perceptions of their engagement and shaped the range and nature of their responses. Given their previous relationship with the research project, parents may also have been more likely to offer socially desirable responses. However, we attempted to minimize this effect by choosing interviewers who were not part of the original project. In addition, the relatively brief data-collection process may have limited the trustworthiness of the data. Although single phone interviews were easier for parents to complete, they did not allow for reflection and insight over time. In addition, we could not follow up on items during the initial conversation; also, we did not conduct member checks. Rather, our data provide a snapshot of parents’ perceptions at one point in time. Despite these limitations, this study adds to the literature by focusing on parents of high school youth with EB disorders, a population that is often overlooked in special education and parent-involvement research.
Implications
Although IDEA (2004) mandated that school districts support family engagement, parents of children with EB disorders report that schools are failing to provide support to students and their families (Huscroft-D’Angelo et al., 2018). School administrators can improve communication with parents by working collaboratively with them to develop IEPs for students, maintaining regular contact with parents, and striving to contact parents proactively, or before student issues become so large that they affect the student’s permanent record (e.g., failing grade).
In addition, school districts that support coparenting between parents may see a reduction in behavioral incidents in academic settings. Kirkland et al. (2011) found that parents who engaged in a 6-week educational program on coparenting had lower rates of parental disagreements, and their children had increased social competence a year after the program compared with families in the control group. Parents in our study told us about the importance of coparental communication and working together as team. Future research on family engagement practices could incorporate a family systems framework and examine the impact that family engagement interventions, including coparenting and communications skill–building, have on students with EB disorders.
Finally, when we began the study, our previous experiences with family engagement led us to believe that parents would describe increased engagement as being more actively involved with the school, or school staff. Hoover-Dempsey, Bassler, and Burrow (1995) described a five-level model of parent engagement that was later revised by J. M. T. Walker, Wilkins, Dallaire, Sandler, and Hoover-Dempsey (2005). The model conceptually described family context and parental beliefs that might influence method of engagement. Similar to what is described in this model, we thought parents’ contextual stressors (e.g., transportation, work schedules) might also influence method of engagement. However, the primary experiences parents described as influencing their method and level of engagement were the nature of school and child communication. Some parents described feeling less of a need to contact the school when they communicated regularly with their child, or received regular and proactive contact from the school. Thus, these parents reported feeling engaged, but their engagement was not a result of increased contact they made to the school. Given the qualitative nature of our study, we are limited only to understanding the experiences of the current study sample. Therefore, it may be important to explore further a revised conceptualization of how context (i.e., communication) might influence parent engagement.
Conclusion
Adolescents with EB disorders and their parents face several challenges in the school environment with development and implementation of an IEP. Parent engagement contributes to student success and is often influenced by school- and family-related factors. Parents we interviewed reported appreciating when school administrators and teachers developed IEP goals collaboratively, IEP meetings were student or family centered, addressed the concerns of the parents and students, and IEP accommodations were followed. Parents also reported positive experiences with the IEP process when the IEP meeting was organized, explanations of processes are given to parents, and frequent communication between the parents and school is established. In addition, parents reported the positive benefits of coparenting when parents or guardians had mutual input, goals, and expectations for their child. Results from this study support previous research emphasizing the importance of empowering families to be more engaged, but add to this literature by addressing the relevance of coparenting support, as well as supporting communication efforts between parents and their children.
Footnotes
Appendix
Declaration of Conflicting Interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This article was supported by an internal grant from the Office of Vice President for Research at the University of South Carolina. All findings, opinions, and conclusions are those of the authors and do not represent the funding agency.
