Engaging those who provide services with those who actually receive services has often been problematic. This opinion piece is based on a housing campaign – the Homes Fit For Children Campaign – and shows how an issue can be raised to a political level. It is an illustration of good practice, demonstrating how occupational therapists can have a pivotal role in change and how real partnership working can make a difference. Although this is not an easy road, with the potential for positive change it is a road worth travelling.
References
1.
BeresfordB (1995) Expert opinions: a national survey of parents caring for a severely disabled child. Bristol: The Policy Press.
2.
BeresfordBOldmanC (2000) Making homes fit for children: working together to promote change in the lives of disabled children. York: Joseph Rowntree Foundation.
3.
BeresfordBOldmanC (2002) Housing matters: national evidence relating to disabled children and their housing. York: Joseph Rowntree Foundation.
BevanM (2002) Housing and disabled children: the art of the possible. York: Joseph Rowntree Foundation.
6.
ChapmanMHarriesU (1998) Buyers to partnership: a report on issues raised around services for children with complex and/or multiple disabilities in Wigan. Wigan: Public Health Research and Resource Centre.
7.
Department of Health and Social Services and Public Safety, Northern Ireland Housing Executive (2002) Joint fundamental review of housing adaptations service. Belfast: Northern Ireland Housing Executive.
8.
GoodingeS (1998) Removing barriers for disabled children: inspection of services to disabled children and their families. Wetherby: Department of Health.
9.
HaslerF (2003) Users at the heart: user participation in the governance and operation of social care regulatory bodies. London: Social Care Institute for Excellence.
10.
HeywoodF (1996) Funding adaptations: the need to cooperate. York: Joseph Rowntree Foundation.
11.
HeywoodF (2001) Money well spent. Bristol: The Policy Press.
12.
HuntAElstonSGallowayJ (2003) Voices for change: current perceptions of services for children with palliative care needs and their families. Bristol: Association for Children with Life-threatening or Terminal Conditions and their Families.
13.
JonesC (2005) Disabled Facilities Grant and Adaptations Review – Wales. Cardiff: Department for Social Justice and Regeneration, Housing Directorate. Available at: http://www.wales.gsi.gov.uk Accessed in March 2005.
14.
McBrideM (2004) Parent participation: improving services for disabled children. London: Contact a Family.
15.
Northern Ireland Department for Social Development (2003) Report of the Disabled Facilities Grant Working Group: review of the means test for parents with disabled children. Belfast: Department for Social Development. Available at: http://www.dsdni.gov.uk Accessed in December 2003.
16.
O'BrienP (2003) Disabled Facilities Grants: are they meeting the assessed needs of children in Northern Ireland?British Journal of Occupational Therapy, 66 (6), 277–80.
17.
SharmaN (2002) Still missing out: ending poverty and social exclusion. Messages from families of disabled children. Ilford: Barnardo's.
18.
Van Der LondenD (2003) A healthy debate: patient and user involvement. Newry: Community Development and Health Network, 17.
