Abstract
In the United States, unintended pregnancy is medicalized, having been labeled a health problem and “treated” with contraception. Scholars find women’s access to contraception is simultaneously facilitated and constrained by health care system actors and its structure. Yet, beyond naming these barriers, less research centers women’s experiences making contraceptive decisions as they encounter such barriers. Through in-depth, semi-structured interviews with 86 diverse, self-identified women, this study explores how the medicalization of unintended pregnancy has influenced women’s contraceptive access and decision-making. We highlight the breadth of such influence across multiple contraceptive types and health care contexts; namely, we find the two most salient forces shaping women’s contraceptive decisions to be their insurance coverage and providers’ contraceptive counseling. Within these two categories, we offer crucial nuance to demonstrate how these oft-cited barriers implicitly and explicitly influence women’s decisions. Paradoxically, it is the health care system, itself, that both offers yet constrains women’s contraceptive decisions.
A wealth of literature finds that unintended pregnancies 1 pose a health risk, contributing to the United States’s poor maternal and child health outcomes (Finer & Zolna, 2016; Gipson et al., 2008). Researchers also conclude that unintended pregnancies are a social problem—one that costs an estimated US$12 billion annually in publicly funded benefits, contributes to intergenerational poverty, and results in lower educational attainment for mothers and their children (Finer & Zolna, 2016; Gipson et al., 2008; Thomas & Monea, 2011; Tsui et al., 2010). Increasing the number of contraceptive varieties available and their use among women 2 is an often purported and widely popular solution to reduce these pregnancies, especially among women considered to be most “at risk” for unintended births (Bellanca & Hunter, 2013; Finer & Zolna, 2011; Power to Decide, 2019).
This medicalization, that is, the process of specifying unintended pregnancy as a medical issue and “treating it” with contraceptives, has implications for most U.S. women (Conrad, 2007; Gomez et al., 2014; Higgins, 2014). In fact, 99% of reproductive age women who have had sexual intercourse have used at least one contraceptive method in their lifetime and, of these women, approximately 78% use contraceptives that are only available through a provider’s prescription or medical procedure (Daniels et al., 2014). Crucially, women rely on this contraception not just for managing fertility, but also for the treatment of numerous health conditions (Spencer et al., 2009). However, while increasing the variety of methods available may outwardly improve women’s ability to choose a contraceptive, it does not inherently improve access to them. Rather, obligating that most methods be acquired from a health care provider often creates and maintains health inequities around contraceptive use. Indeed, by examining women’s experiences accessing contraception, we demonstrate the salience of the health care system and its actors in shaping women’s decisions and, importantly, their access to contraception.
Although women have obtained methods like the birth control pill and diaphragm from health care providers for decades, the number of actors, organizations, and corporations now involved in this access have proliferated in recent years, obligating the continued exploration of its effects on patients (Conrad, 2005; Tone, 2012). For instance, shifts in clinical guidance around contraceptive counseling may greatly influence the substance of, and approach to, contraceptive counseling among providers in ways that does not always center patient needs. The American College of Obstetricians and Gynecologists (ACOG) now recommends that their members conduct reproductive life planning and contraceptive counseling with all patients (ACOG Committee on Gynecologic Practice, & Long-Acting Reversible Contraception [LARC] Working Group, 2009). Furthermore, the U.S. Office of Disease Prevention and Health Promotion (ODPHP) and Centers for Disease Control and Prevention (CDC) similarly recommend that all health care providers, despite specialization, counsel women on contraception at each visit despite the intention of the appointment (CDC, 2006; ODPHP, 2014).
To implement these initiatives, offer technical support, and conduct outreach to contraceptive users, new nonprofit organizations have emerged. A central aim of these initiatives is to increase women’s uptake of LARC by training providers on how to place devices and more successfully counsel patients on their use (Bellanca & Hunter, 2013; Higgins, 2014; Power to Decide, 2019). Moreover, in the past decade, pharmaceutical companies have developed more than a dozen new birth control methods and created numerous, targeted product advertisements with strong pregnancy prevention messaging for women (Mann & Grzanka, 2018). Many of these changes come on the heels of the 2012 federal legislation that mandated most insurers offer cost-free contraceptive coverage (Snyder et al., 2018).
In applying a Reproductive Justice lens, people’s contraceptive decisions should be fully informed, fully voluntary, all methods should be readily available, and all methods should be equally counseled on (Gomez et al., 2014; Gubrium et al., 2016; Ross & Solinger, 2017). However, within the context of the U.S. health care system, scholars raise concerns about reproductive autonomy while also recognizing the potential benefits of contraception to patients’ health and fertility planning (Gomez et al., 2014; Gubrium et al., 2016; Higgins, 2014; Ross & Solinger, 2017). These scholars caution that despite its many benefits, the overemphasis on preventing unintended pregnancies can undermine women’s ability to steer contraceptive decision-making as well as result in unnecessary and harmful barriers to accessing contraception should they choose to use it.
This study specifically examines the ways that health care–related barriers to contraception affect such access and decisions. To do so, we ask, “What barriers do women experience when deciding upon and acquiring contraception within the present health care context?” Indeed, by emphasizing women’s experiences, we can improve contraceptive equity by more fully contextualizing known barriers to contraception and identifying the most salient access issues within the current U.S. health care system. Doing so can also inform contraceptive interventions and related policies, especially as barriers persist despite recent national health care reform and concerted local and state efforts to promote birth control use.
A large body of scholarship does examine women’s contraceptive barriers, exploring social as well as medical contexts in which decisions occur (see, for example, Finer & Zolna, 2011; Gipson et al., 2008; Hall et al., 2017; Littlejohn, 2012; Ostrach & Cheyney, 2014; Reed et al., 2014). Researchers point to evidence that U.S. women encounter contraceptive barriers situated within health care, such as ineffective or biased provider counseling, insurance coverage gaps, and limited access to health care (Bessett et al., 2015; Kimport, 2018a, 2018b; Kimport et al., 2017). Beyond identifying such barriers, we extend existing research by demonstrating how, explicitly and implicitly, features of the U.S. health care system and its actors inform women’s experiences acquiring contraception and their decision-making around its use. We also demonstrate the breadth of such influence across contraceptive methods and across a variety of health care contexts (Akers et al., 2010; Beeson et al., 2014; Bessett et al., 2015; Harper et al., 2010). Indeed, in an era where policy makers and public health stakeholders laud new contraceptives and incentivize patients to select them, we demonstrate through women’s experiences that it is paradoxically this medicalization that both offers yet hinders women’s contraceptive decisions by further exposing them to health care–related barriers.
To make such an argument, we first outline the medicalization of unintended pregnancy followed by women’s contraceptive decision-making within health care contexts. Through our data, we demonstrate how, and to what extent, features of the health care system and its actors fundamentally impact women’s experiences obtaining birth control. By highlighting women’s experiences, rather than simply the barriers themselves, we contextualize these barriers and demonstrate their entrenchment in the larger health care structure. Doing so, elucidates opportunities as well as challenges for addressing these barriers. Moreover, we show the ongoing stratification of contraceptive access because this access is predicated on interactions with the health care system—an institution that is itself unequal (Nelson, 2002).
Background
Medicalization and Unintended Pregnancy
Medicalization is a continuous and complex process whereby natural life events like pregnancy, both intended and unintended, become defined and treated as medical problems (Conrad, 2007). Nearly all aspects of reproduction, including unintended pregnancies, are medicalized (Armstrong, 2003; Waggoner, 2017). How conditions like unintended pregnancy are medically defined and who is treated are often the result of external actors and social contexts (Conrad, 2005). Increasingly, scholars recognize the complexity of the term “unintended” to describe mistimed or unwanted pregnancies, instead demonstrating that women can feel a range of emotions, including joy, dread, and ambivalence about pregnancy (Higgins et al., 2012; McQuillan et al., 2011). Furthermore, women do not necessarily apply or adopt terms such as unwanted or unplanned to describe their pregnancies (Barrett & Wellings, 2002). Rather, the concept “unintended pregnancy” emerged among concerned stakeholders as a deviant form of pregnancy in the wake of unprecedented global population growth in the 1950s alongside increasing rates of births to young, unmarried women, as well as women of color and women with immigrant backgrounds (Bongaarts et al., 1990; Campbell, 1968; Roberts, 1997). Policy makers and medical establishments have historically addressed larger social problems, like population growth and poverty, with concerted efforts to limit the reproduction of socially marginalized groups through the coerced use of contraception and sterilization (Roberts, 1997; Ross & Solinger, 2017). At present, these concerns persist and this lack of reproductive autonomy often manifests as women encounter systemic health care barriers to obtaining the contraceptive of their choice, including when women prefer not to use a method at all.
Although scholars increasingly, and importantly, question the link between unintended births and alleviating the nation’s health and social ills, expanding access to birth control remains the most popular and short-term solution advocated among policy makers and health care providers to reduce unintended birth rates (Gipson et al., 2008). Claims that unintended births pose a serious risk have garnered widespread social acceptance for birth planning, especially among White, middle-class women (Waggoner, 2017). Furthermore, birth planning using contraception is now a model framework among health care professionals and organizations for reducing reproductive risk. For instance, ACOG and the CDC now recommend intrauterine devices (IUDs) and subdermal arm implants for most women, recently including sexually active adolescents and nulliparous women in their guidelines (ACOG Committee on Gynecologic Practice, & LARC Working Group, 2009; CDC, 2006). This institutionalization of contraception as both the solution and treatment for unintended pregnancy further legitimates and necessitates contraceptive interventions, and encourages action by policy makers and health care providers (CDC, 2006; ODPHP, 2014; Waggoner, 2017). Doing so, considerably broadened contraceptive markets for pharmaceutical companies who have since capitalized on the new guidelines and motivated policy makers by generating several new birth control pill varieties, IUDs, and the subdermal arm implant in the past 10 years. Manufacturers advertise many of these methods for multiple purposes, including pregnancy prevention, treatment for reproductive health conditions, and menstruation suppression (Shoupe, 2016; Watkins, 2012).
In this way, the medicalization of unintended pregnancy has aided in expanding the role of health care in women’s reproductive lives and the reach of its actors to indirectly and directly determine appropriate reproductive activities, contraceptive use, and its availability (see, for example, Armstrong, 2003; Conrad, 2007; Roberts, 1997; Waggoner, 2017). Moreover, health care contexts continue to shift as federal and state-level policies affect women’s access to contraception, and the market-based health care system continues to transform the insurance coverage and medical landscape in which women make contraceptive decisions. As such, health care contexts remain essential to explore as they influence the conditions in which most women access contraceptives. Indeed, for many women desiring treatment for health conditions or desiring contraception to prevent pregnancy, continued advancements in contraceptive technologies can greatly improve their lives by supporting their overall health and well-being, as well as help individuals achieve their fertility goals. In this way, it is not the advancement of contraception that is inherently problematic, rather, it is the process of acquiring this contraception through the health care system that poses undue challenges to women’s access.
Medicalization and Contraceptive Decision-Making
Despite efforts that encourage women’s contraceptive use and address access barriers, unintended pregnancies persist, especially among young, low socioeconomic status (SES), and unmarried women (see, for example, Finer & Zolna, 2016). Consequently, a vast body of research seeks to understand women’s contraceptive use and decisions, especially why they choose some methods over others, inconsistently contracept, or do not contracept at all (Borrero et al., 2014; Daniels et al., 2014; Higgins et al., 2012; McQuillan et al., 2011).
However, childbearing decisions and whether to use contraception to prevent pregnancies, are contextual, complex, and diverse (Borrero et al., 2014; Higgins et al., 2012; McQuillan et al., 2011). The health care system and its many actors add to this complexity. At the most basic level, encouraging women to use contraception and then requiring that they access most forms from health care providers creates inherent barriers. For instance, women are exposed to external forces within health care, such as insurance and pharmaceutical company policies and profit goals, as well as political and public health initiatives whose incentives may not align with women’s desires or effectively address women’s access issues (Conrad, 2005; Gubrium et al., 2016; Higgins, 2014). Scholars have identified many prominent barriers, such as systemic access issues, provider knowledge or bias, and interpersonal interactions between patients and providers (Dehlendorf et al., 2013; Dehlendorf, Levy, et al., 2010; Gomez et al., 2018; Gomez & Wapman, 2017; Kimport, 2018b; Kimport et al., 2017; Littlejohn & Kimport, 2017; Mann et al., 2019). Understanding how these barriers then implicitly and explicitly affect women’s experiences obtaining contraception, as we do in this article, further elucidates the complex conditions in which women make their contraceptive decisions and the challenges they face in achieving reproductive autonomy.
Indeed, despite the 2010 Patient Protection and Affordable Care Act (ACA), women continue to encounter structural barriers that affect their access to, and decisions about, contraception, such as limited appointment times; long waitlists for available providers, especially providers accepting public insurance; geographic access issues; and other tertiary concerns arising out of the obligation to seek medical care, such as coordinating child care, child care costs, and transportation (ACOG Committee on Health Care for Underserved Women, 2015; Goodman et al., 2008; Politi, Estlund, et al., 2016; Politi, Sonfield, & Madden, 2016; Secura et al., 2010; Weisman et al., 2002). These structural barriers are particularly difficult for lower resourced women to navigate but can create unnecessary gaps in all women’s contraceptive coverage (ACOG Committee on Health Care for Underserved Women, 2015).
Health communication also influences women’s contraceptive use. Patient–provider interactions are linked to health outcomes, potentially creating barriers to care, in general, and women’s desired contraceptives, in particular (Dehlendorf et al., 2013). Women’s initiation of contraception and improvement in overall method knowledge are significantly associated with extensive provider counseling (Harper et al., 2010). However, some health care providers lack accurate knowledge about contraception or hold biases about certain methods that can affect the quality of contraceptive counseling and deny women access to a full range of birth control (Dehlendorf, Levy, et al., 2010; Kimport, 2018b; Kimport et al., 2017). These communication barriers are often a result of provider assumptions about patients and subjective criteria used to guide contraceptive counseling (Kimport et al., 2017; Littlejohn & Kimport, 2017). Clinics may further deter contraceptive use by delaying its initiation for menses, required laboratory tests, or obligating women attend multiple appointments before prescribing contraception (Bergin et al., 2012; Leeman, 2007). Beyond identifying provider counseling and clinic policies as barriers, however, understanding how they then shape women’s decision-making experiences is essential to constructing solutions to such barriers.
Given the significance of health communication on women’s experiences and outcomes, great efforts have been made to improve the patient–provider interaction. Patient-centered care is a popular recommendation where patients ultimately guide conversation and health care decisions (Dehlendorf et al., 2013; Stewart et al., 2000). Such efforts can be successful when recognizing that women’s preferences for interaction and communication styles vary widely, often dependent on their age, past experiences, race/ethnicity, and language. Dehlendorf and colleagues (2013) found that, in addition to patient-led approaches, direct communication about needs and goals in care may improve interactions as does empathetic care and motivational interviewing techniques. They recommend patient-specific, nondirective counseling strategies that encourage open communication and offer a full range of contraceptive options and information. However, given constraints found within the health care system, such as short appointment times, inconsistent provider training around contraception, provider biases, and other structural barriers, such as insurance coverage, serve to undermine the patient–provider relationship.
Moreover, public health initiatives and professional guidance around pregnancy risk influence providers’ contraceptive counseling strategies in ways that may encourage greater use of IUDs and the implant, often at the expense of honoring women’s contraceptive preferences and needs (Gomez et al., 2014). Consequently, rather than utilize nondirective counseling practices, providers may use targeted counseling, especially for women whom researchers identify as experiencing greater rates of unintended pregnancy, such as low-income women, young women, unmarried women, and women of color. Providers are more likely, for instance, to encourage women of color to use IUDs, the implant, or sterilization, relative to White women (Borrero et al., 2009; Dehlendorf, Ruskin, et al., 2010; Gomez et al., 2018; Mann & Grzanka, 2018). Moreover, Black and Latina patients have identified an implicit pressure to accept contraceptive methods favored by their providers (Gomez & Wapman, 2017). In yet other cases, providers may downplay side effects or discourage women’s contraceptive desistance, citing pregnancy risk as their justification (Amico et al., 2017; Littlejohn, 2013). Women who feel pressured or who feel their desires are not honored are more likely to discontinue their contraceptive method and, in some cases, limit their future encounters with health care personnel (Gomez & Wapman, 2017; Littlejohn, 2013). Ironically, desisting from contraceptive use increases the likelihood of an unintended pregnancy and merely reinforces providers’ assumptions that some women are at greater risk for unplanned births. This implicates women’s individual decision-making rather than fully understanding the role providers and health care structures play in shaping such decisions.
Exploring women’s efforts to access contraception both identifies their barriers to contraceptive use and elucidates health care contexts as a critical factor in women’s decision-making and experiences. Existing research has insightfully begun to demonstrate and expose barriers to women’s contraceptive access within health care contexts, particularly focusing on provider–patient interactions and systemic access issues such as cost. In addition, other scholars have importantly raised concerns about reproductive and bodily autonomy associated with such barriers (Gomez et al., 2018). However, more empirical work is needed to explore women’s experiences accessing contraception within these health care settings, as doing so offers more context to known barriers and demonstrates their role in women’s decision-making. These insights inform opportunities to ensure women’s reproductive autonomy as they make decisions, support contraceptive equity, and, crucially, improve contraceptive interventions and related policies.
Method
This research is part of a larger evaluation of the “Delaware Contraceptive Access Now” initiative, a statewide program focused on reducing unintended pregnancies and improving access to and delivery of contraceptives, particularly LARC. We sought to interview up to 100 individuals, having successfully recruited 86 participants. All participants self-identified as women and their ages ranged from 16 to 44 years, with an average age of 30 years. Although not specifically captured in the study sample, the findings have relevance for some transgender and nonbinary people as well (Gomez et al., 2020; Forsberg & Eliason, 2020).
To recruit participants, we posted fliers in medical clinics and at public venues and organizations such as public libraries and retail stores. We used quota sampling to recruit participants about equally by age, race/ethnicity, SES, and clinic type. Forty-five women (52%) were recruited from the general population and 41 women (48%) from health clinics. We further divided clinic recruitment into private clinics, those that do not accept publicly funded insurance (n = 27), and Title X clinics that receive federal grant funds to provide comprehensive family planning services that prioritize individuals with low incomes (n = 14). Similarly, women’s insurance status was varied, with most women either having employer-based insurance 3 (n = 41) or Medicaid 4 (n = 33). Five women were not covered by insurance at the time of their interview and three women did not know whether they were covered. One participant self-paid for her insurance coverage and three participated in hybrid coverage options.
Using a demographic questionnaire, we grouped participants by SES, using the participants’ income, occupation, as well as their highest education level completed and the education level achieved by their childhood caregivers. Forty-four women (51%) were of low SES and 42 (49%) of high SES. Participants were racially diverse. Forty-two women (49%) identified as White/White non-Hispanic, 27 (31%) as African American or Black, 10 (12%) as Hispanic, four (5%) as Asian, and three (3%) identified as mixed race, self-reporting their race/ethnicity as White-Asian, African American–Hispanic, and White, Hispanic, and Native American.
In line with nationally representative studies surveying women’s contraceptive use (see, for example, Daniels et al., 2014), women used a range of contraceptive methods, although nearly a third of our sample reported not using contraception at the time of the interview (n = 24). Meanwhile, 15 (17%) used more than one method simultaneously, 14 (16%) used condoms only, 12 (14%) used the birth control pill, eight (9%) used an IUD, seven (8%) had permanent procedures such as a tubal ligation or Essure, 5 three (3%) used an injectable method, one woman used a subdermal arm implant, one woman used natural family planning, and one woman used withdrawal.
We held in person interviews primarily in public library study rooms, or in a location of the participant’s choosing, between July 2016 and August 2017. On average, interviews lasted 66 minutes, ranging from 31 minutes to more than 2 hours. The interview inquired about women’s attitudes, beliefs, and behaviors around contraception as well as their contraceptive history and experiences obtaining and using contraception. We also asked participants detailed questions around how methods were acquired and any challenges they faced in obtaining their desired methods. Specifically, we ask participants to recount provider appointments where contraception was discussed as well as the participants’ history of insurance coverage and access. Probing questions were asked, where appropriate, to clarify specific experiences and any met or unmet needs for contraception (Weiss, 1994).
A diverse research team of five, including the authors, conducted the interviews that were later transcribed verbatim. The team collaborated to construct a rigorous analytical process, developing codes inductively, similar to a grounded theory approach, through an iterative process of reading transcripts and meeting together to identify and discuss common patterns and themes, many of which centered around questions we posed to participants such as if and to what extent they experienced challenges acquiring contraception (Charmaz, 2014). We then entered codes such as “barriers to contraception,” “insurance,” and “cost” into a qualitative research software program and further refined them into hierarchical coding schemes as we coded line-by-line. Insurance and provider counseling emerged as two fundamental facilitators and barriers to contraception, affecting each participant in some meaningful way. To maintain consistency and a robust analytical process, researchers reviewed transcripts in pairs for inter-coder reliability and continuously memoed throughout the coding process about relevant themes (Charmaz, 2014). All quotes used in this article are the most illustrative examples among many provided by participants. Data were only included when commonplace across participants unless otherwise specified. This study was approved by both a state and university institutional review board (IRB). Each participant provided written informed consent that we recorded and stored in accordance with IRB requirements.
Findings
Through women’s experiences acquiring contraception, the following section demonstrates how features of the health care system and its actors influence women’s contraceptive decisions. Indeed, we find that women continue to face barriers to their preferred contraception despite recent national health care reform and local- and state-level birth control promotion. Here, we discuss in depth the two most salient forces women described as having shaped their contraceptive decisions—their insurance coverage and the contraceptive counseling they received from their health care provider. We selected these two broader categories as each woman in the study identified them as factors in their decision-making. Within these two categories, we find crucial nuance about the ways these barriers operate across and among women and ultimately come to influence women’s contraceptive decisions and access.
Insurance
Women’s insurance greatly affects their experiences acquiring contraception because for each participant it predetermines under what conditions which methods are available. One woman reflects on why she was recently unable to obtain her desired name-brand birth control pill saying, I wanted a low hormone [method] and everything like that and [my doctor] suggested whatever Medicaid could cover. And see that’s another thing. Not only do I have to go within whatever my Medicaid would cover for doctors, but I had to go with whatever Medicaid can cover for contraception . . . So I guess he initiated what my other options were because the kind that I wanted wasn’t Medicaid approved.
Here, we see that while women can be active consumers of contraception, they do so within a much larger system driven by forces that often do not center their needs (Conrad, 2007). Indeed, one third of pill users in this study referred to insurance as having limited their contraceptive options. In several cases, providers for commercially insured women willingly prescribed the desired brand pill only to have the pharmacist inform the women that these methods were not actually covered by insurance.
It is common practice for both commercial and public insurance to restrict which providers and contraceptive coverage women receive (Snyder et al., 2018). Such insurance-related barriers are further compounded for women on Medicaid due to the strict income-based eligibility guidelines and complex bureaucratic requirements to maintain coverage. The above participant continues saying, [M]y medical care has been so scattered between moving and I made too much money . . . so my Medicaid gets cancelled . . . And one other time where it had just lapsed so it’s been an issue.
Notably, these coverage gaps affected almost all Medicaid-covered participants at various points. For many low SES women who qualify for Medicaid, the process of obtaining and maintaining coverage can result in delays to care as well as limit access to their desired contraception (Leyser-Whalen & Berenson, 2013; Ostrach & Cheyney, 2014). In other words, continuous and satisfactory contraceptive access is not guaranteed despite the U.S. Medicaid insurance program.
Women may also lose the ability to choose their method when insurance providers change which contraceptives they cover or when women change insurers whose coverage varies from their previous carrier. These issues are particularly typical with pill formulations—the most common method used in the United States (Daniels et al., 2014). A participant explains, [My insurance] actually used to cover [my pill] completely and I just changed my insurance and it actually doesn’t and they offered like a different kind of contraceptive, but I opted to just kind of pay the difference and stay on the same one because I knew that it worked for me and my body . . . It was still just birth control, but it was like two different brands or kinds with like different things in them, so the one that I’m on I have been on for like a long time and it worked well for me. And the one they suggested was like a different . . . so I didn’t want to switch it up because my body was like used to the one that I was on . . . But it was like pretty much the cheapest birth control you could like get was the only one that they would cover . . . So yeah, I don’t know all the rules and details. But it just kind of sucks.
This participant is disappointed that her previous pill variety is no longer available and raises important concerns about side effects from different formulations—so much so that she decides to pay out of pocket to keep her current method. In this way, insurance coverage not only affects whether a woman has access to birth control, but also which variety. These access issues can affect the quality of life for women worried about side effects, health risks, and the medical benefits associated with contraception—concerns most birth control pill users hold, including those in our study (Geampana, 2019; Littlejohn, 2013). Importantly, this participant expresses a lack of knowledge about how insurance works, which can shape how patients respond to such barriers and understand their options. In fact, few women in our study understood how and why their insurance covered some methods and not others, and were unaware of how to go about navigating these issues. Moreover, women who experience side effects or fear them are more likely to desist from their method (Littlejohn, 2013). As such, formulary changes may especially impact lower resourced women who cannot pay out of pocket for a contraceptive they feel safe and comfortable using or for women who are simply unaware of that option (Bessett et al., 2015).
Indeed, the above participant overcomes her insurance coverage change because she can afford to pay for her method outside of insurance, an option lower SES women like the participant below do not always have (see, for example, Bessett et al., 2015). This woman works for an employer with a religious exemption that permits the company to exclude contraceptive coverage as a part of their employer-based insurance plan. As a result, she desists from one method while waiting to acquire a less expensive one. She explains, And the reason why I stopped using [the Nuvaring]
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was because [my employer] doesn’t cover birth control . . . they was like, “Yeah, your insurance doesn’t cover it.” [My coworker] told me the birth control pills are a lot cheaper, so she pays for the birth control pills [out of pocket] and that’s why I went back to birth control pills.
This woman went without contraception until she could get an appointment with her health care provider and change to the pill—a less costly, but less desirable method. While the religious exemption only affected one participant, more employers can now qualify for it after a recent Supreme Court ruling that significantly expanded the type of corporations that can claim such an exemption (see, for example, Higgins & Mangan, 2020). While this is an insurance-initiated barrier, it is exacerbated by this participant’s inability to then pay out of pocket for her desired method, which forces her to choose the pill over the Nuvaring. Moreover, because the birth control pill requires a provider’s prescription, she must wait for an appointment because, unlike in other countries, U.S. patients cannot purchase the pill over the counter. This requirement created delays for this participant and is an access issue for all U.S. women regardless of their insurance type and despite the contraceptive coverage mandate of the ACA (Potter et al., 2010; Trussell et al., 1993).
Bureaucratic timelines built into insurance policies may also shape women’s contraceptive experiences and decisions. Sterilization procedures are relatively common in the United States among women no longer desiring children (Daniels et al., 2014). However, Medicaid stipulates that women must be at least 21 years-old prior to obtaining a tubal ligation or Essure, a requirement that burdens younger, particularly low SES mothers desiring the procedure (Leyser-Whalen & Berenson, 2013). In addition, although private and commercial insurers also cover sterilization fees, Medicaid requires that patients consent to the procedure 30 days prior to giving birth, while no such time restrictions are present within private insurance policies. This differentiation creates a two-tiered system that does not allow for equitable access to sterilization (King & Meyer, 1997; Leyser-Whalen & Berenson, 2013). Here, one participant describes how the rigidity of this policy could not accommodate the premature birth of her son and disqualifies her for sterilization coverage through her public insurer: I wanted [sterilization] when I had my last son. I have Medicaid and they would have covered it . . . but . . . it was not 30 days, so they told me that if they did [the procedure] right after I gave birth . . . I would have to pay. Medicaid would not cover it. So of course I wasn’t going to get it done then. And they said, “Well, we could make the appointment for another few weeks after you recuperate” . . . I had C-sections. But still, I was just scared . . . I wanted them to do it when I had the baby and while they were already down there, had me open. And he just came a little bit earlier than he was supposed to, so it didn’t work out.
The insurance restrictions serve as a barrier to this woman receiving her contraceptive method of choice. Unable to complete the procedure immediately following childbirth, she elects not to return for a subsequent procedural appointment out of fear, thereby not only forgoing sterilization, but also forgoing an alternative contraceptive. Denying these procedures can have grave consequences for women’s reproductive lives as women who are denied sterilization are more likely to become unintentionally pregnant within the year following that denial (Thurman & Janecek, 2010).
Recent ACA cost-sharing measures can reduce out-of-pocket expenses for women (Snyder et al., 2018); however, while insurance is understood to be a barrier for some women, our findings reveal the breadth and significance of this barrier across and among women, in general. Moreover, understanding how these barriers shape women’s contraceptive decision-making also reveals the complexity of women’s contraceptive needs and the role that actors within the health care system play in shaping women’s contraceptive outcomes. Given the seriousness of side effects or the permanency of some methods, switching methods or delaying access unnecessarily increases barriers and disincentives for women pursuing health goals around fertility management and fundamentally influences the decisions they are able to make about contraception.
Patient–Provider Health Communication
While nearly all participants experience insurance or other similarly cost-related issues while accessing contraception, most participants also cite provider–patient communication as integral to their experiences and contraceptive decisions. Indeed, researchers link this dialogue to patient health outcomes, noting that poor communication can lead to numerous barriers to care, in general, and women’s desired contraceptives, in particular (Dehlendorf et al., 2013).
Importantly, we identify several external factors, such as provider training, public health initiatives, and clinic policies, which informed the substance and style of provider communication with women and their subsequent patient experience. For instance, well-meaning clinic protocols can impact the substance and quality of individual provider–patient interactions in profound ways. Notably, more than 30 states now train their health care providers to ask the “one key question” in every appointment for women aged 18 to 50 years to reduce unintended pregnancy risk using contraception—“Would you like to become pregnant in the next year?” (Power to Decide, 2019). The training urges providers to counsel women not desiring pregnancy about contraception even if the appointment is not related to reproductive health. A woman recounts her experience with this new approach at a recent appointment saying, Every time I would go in there and they would try to get me . . . to choose . . . which one to pick . . . and I would just tell them, “No, I want to just wait” . . . I was uncomfortable because I’m like, “Why are you trying to force me to do something that—I didn’t even come here to complain about” . . . “You’re just throwing these out here” . . . And I appreciate it because it’s knowledge, but I didn’t come here for that. I came here for like a hurt hand and you’re asking me, “Did [I] choose a birth control method yet?”
During her visit, the physician inquired about the participant’s interest in contraception due to standard clinic policy but doing so signals that this patient’s preferred method, condoms, is not a qualified choice. The participant describes how this assumption affects her experience at multiple appointments where the focus is on contraception rather than her presenting health needs. Consistent with other research, as an African American woman, she and several other participants who described similar experiences may have felt especially pressured by providers to choose from the most effective methods available because of unfounded stereotypes around hypersexuality and hyperfertility (Dehlendorf, Ruskin, et al., 2010; Gomez & Wapman, 2017). This case demonstrates that patient–provider interactions not only affect women’s experiences obtaining contraception, but also their health care quality more broadly. In addition, women who sought care from clinics specializing in family planning or who received Title X funding, which disproportionately serve low SES women and racial minorities, appeared more likely to receive this intentional style of contraceptive counseling at each visit relative to women who sought care at general family practice clinics or private clinics.
Clinic protocols around scheduling also affect the quality and substance of patient–provider interactions. Most participants reflected this problem, describing how they felt that their providers were too overburdened or rushed to offer adequate counsel about contraceptive methods because appointment times were simply too short or other patients were waiting. Some women recalled having fewer than 10 minutes with their provider each year, expressing how this limited their ability to enact contraceptive decisions. For instance, one participant sought to change from an estrogen combination pill to a longer acting, progesterone-only method because her mother and aunt were recently diagnosed with breast cancer. She shares, It felt like I was on a factory assembly line where I had like five minutes with [my doctor] . . . like I had asked her in the past about my concerns about having been on the pill for so long and her response was essentially, “Ah, if it’s not broke, don’t fix it.” And she didn’t even like entertain a conversation . . . And five minutes later I was dressed and out of the office.
This narrative speaks to ways punctuated appointment times and overburdened providers undermine women’s contraceptive decisions by failing to host conversations about methods. The participant stayed on the pill, having left the appointment with neither a new method nor an answer to her legitimate health questions. Following the appointment, she elected to change doctors, citing concerns not just about remaining on the pill, but also about how that method had been found to pose health risks, such as strokes, for older women like herself. Notably, she enjoys the privilege of a high-quality, commercial insurance that allows the flexibility to change providers, where women with more restrictive or publicly funded policies cannot as readily navigate contraceptive barriers using these strategies.
While policies can be influential, providers’ medical training forms the basis of their clinical knowledge and often determines their contraceptive counseling approaches. For many of the participants, providers asserted this knowledge in ways that undermined the women’s own knowledge, appointment experience, and subsequent decision-making. More than a dozen participants recalled instances where they felt their providers did not trust their contraceptive decisions (Kimport, 2018b; Stevens, 2018). One woman reflects on an appointment where she sought an IUD, saying, I wanted something non-hormonal and it was long-term. It was the copper IUD . . . I had to fight for that because I didn’t have children and providers did not want to give you an IUD without having kids . . . I knew that’s what I wanted and there were a couple of doctors that wouldn’t give it to me . . . I was serious that I didn’t want to be pregnant and I wanted the IUD . . . I told them . . .“Well, there’s no chance that I want kids. So it’s okay. I’m willing to take that risk.” And they still said, “No, we’d rather you use something else because you don’t have kids.”
Such experiences imply that providers, rather than women, can veto and ultimately make contraceptive decisions. As we see in the above case, this holds true even in circumstances where women are knowledgeable about contraceptive methods, challenging providers who may operate on outdated medical paradigms.
Despite rigorous medical training, providers, themselves, often lack sufficient knowledge about contraception to adequately counsel their patients; yet, because of their authority to prescribe within this medicalized context, women’s choice can be easily undermined. This participant seeks out her provider to initiate contraception, however, she feels her provider’s explanations about various methods are inadequate. Consequently, she feels unable to choose a method at her appointment and, instead, undertakes contraceptive research on the internet to supplement her provider’s counseling prior to deciding. She explains, I can spend two hours scouring the Internet and trying to get the information. You shouldn’t have to do that . . . [b]ecause even some of that stuff I would ask my doctor and . . . they couldn’t tell me the ins and outs . . .
Gaps in contraceptive knowledge are particularly likely among providers who do not specialize in women’s health but who offer contraceptives to women as a part of their overall patient care—an issue seen by most participants seeking contraceptive care from providers not specializing in women’s health (Akers et al., 2010; Duke & Ames, 2008). As the two cases above demonstrate, provider knowledge gaps affect women’s decision-making and obligate additional labor and resources to navigate them.
Such power asymmetries between patients and providers are inherent within health care and can have particularly significant consequences for young and marginalized women’s ability to steer contraceptive appointments and decisions (Hoffman et al., 2016). A woman in her late 20s recalls, And like one of the nurses came in and she was talking to [the doctor] and . . . she was asking me a question. And I’m like, “I can’t think because I’m naked and you’ve got the door open” . . . They had wrote me a prescription for something after I told her I didn’t want it and she still wrote me the prescription. And they were like asking me what pharmacy I wanted it to go to and I was like, “I just told you I didn’t want it.” [B]ut she still wrote the prescription . . . sometimes people think I’m younger than what I am. So she probably thought I was like even younger. So maybe she felt like she knew better than I knew.
This participant, as with a handful of younger African American and Latina participants, feels her provider is skeptical of her claim as a young (Black) woman to remain abstinent until marriage and prescribes her a birth control pill anyway—a prescription she elected not to fill. By prescribing contraception, despite the patient’s desire not to use any and instead remain abstinent, her provider effectively alienates her from her own contraceptive decision-making process where medical knowledge and treatment are valued over women’s desires. The provider’s efforts to prescribe contraception also reflect an assumption that abstinence is not a valid method. Moreover, by not filling the prescription, her provider may come to view her as a noncompliant patient, an issue that is more common among racial minority and low SES patients. Such actions also hinder the potential for a positive patient–provider relationship in the future (Gomez & Wapman, 2017; Zola, 1981). Indeed, although several typically younger White patients felt that their providers did not agree with their contraceptive choices, most White participants described trusting their providers and did not feel unduly pressured to use contraception. Certainly, White patients, in general, enjoy more positive relationships with their race-concordant providers, a likely consequence of White privilege manifesting within health care settings (Cooper-Patrick et al., 1999).
For another young participant, age may have also affected her ability to choose her desired contraceptive—a phenomenon retrospectively described by many women trying to obtain contraception from providers at a younger age. Here, this participant is a young, White woman and describes a recent appointment where her mother and provider ultimately choose a method for her, neglecting the patient’s own desire for an IUD and putting her at greater risk for an unwanted pregnancy. The participant explains, My mother wanted me to start with the pill and my gynecologist wanted me to start with it just so I could see like—it’s just like a pill I would have to take instead of injecting something into me or putting an implant into me. They just kind of wanted to see if I could take it [for five months] . . . part of me felt like it was kind of a waste of time like a waste of like five months because I knew how I would take pills and I knew even if I had a reminder on my phone, I probably wouldn’t get up and take it. It’s just like I guess an inconvenience for me?
She leaves the appointment fearing pregnancy because she knows she already forgets to take another daily medication and is regularly having sex. When asked why she is willing to continue care with this provider even if she felt dissatisfied with the outcome, the participant explains that it was her mother’s longtime doctor, and she trusts him without question because her mother does. This loyalty speaks to the power of providers, their presumed knowledge, and the ways trust in health care, or lack thereof, can be transmitted intergenerationally, affecting women’s contraceptive experiences over the life course (Washington, 2006). It may also speak to the power of White privilege in terms of some women’s willingness to trust providers without having to question the role of race when their preferences are not enacted (Cooper-Patrick et al., 1999; Washington, 2006)
In sum, providers are still gatekeepers to contraception, even when efforts to alleviate systemic barriers and insurance coverage are made. These constraints may be felt more significantly by racial/ethnic minorities and low SES or younger women who may be more likely to encounter these issues and simultaneously lack the resources necessary to overcome them.
Discussion and Conclusion
Despite recent health care reform, the proliferation of contraceptive types, interventions that encourage their use, and provider training, women continue to experience barriers to the contraceptive methods of their choice. We find two salient forces intrinsic to contemporary health care that influenced most women’s contraceptive decisions and experiences as well as served as gatekeepers to women’s access—their insurance coverage and provider interactions. Ironically, such barriers are a function of the very health care system entrusted with expanding this access. By centering women’s experiences acquiring contraception, we go beyond identifying barriers to exposing how broader health care structures and actors then influence women’s contraceptive decisions and outcomes. Put simply, women’s contraceptive decisions cannot be understood without accounting for the role of health care and its actors in shaping them. Indeed, rather than identifying individual women’s contraceptive choices or offering broad categorizations of barriers such as insurance or communication, we reveal the myriad ways these barriers manifest across women, across contraceptive types, and within numerous health care contexts. Understanding and acknowledging such nuance and complexity is necessary to enact policy change and respond to growing concerns about women’s contraceptive access as a central issue within the broader Reproductive Justice movement.
Our findings demonstrate that insurance policies designed to improve access to contraception not only influence women’s contraceptive decision-making, but also often limit their access. The totality of these barriers suggests that the contraceptive coverage mandate within the ACA does not guarantee women access to cost-free birth control. In fact, in many ways, insurance poses a significant barrier to access, especially when employers or political entities weaponize insurance policies to control women’s contraceptive choices that contravene reproductive justice principles, for example, support religious exemptions for contraceptive coverage.
Although contentious, universalizing health care or, alternatively, moving to a single-payer system, may reduce unnecessary gaps in coverage for women struggling to overcome Medicaid eligibility requirements and for those who lack sufficient coverage (Quick et al., 2014). Other insurance-related barriers seen in the data point to additional benefits of universalizing coverage. For instance, employer-based insurance has notable limitations. Patients only receive coverage if they are qualified as full-time employees, are covered under other full-time employees, and/or work for firms large enough to offer coverage (Garfield & Damico, 2015). Tying insurance, and by extension, contraceptive access, to employment makes this access susceptible to global economic downturns, public health emergencies like those we face today, and judicial rulings regarding employers’ religious protections. Furthermore, due to the high costs for many employer-sponsored insurance plans or poor coverage offered within them, many eligible employees opt out of coverage (Garfield & Damico, 2015).
As a stopgap, while policy makers debate health care reform, expanding access to alternative options for care and contraception may be beneficial. For instance, increasing the Medicaid income threshold to include more low-earning families can support contraceptive access in states that have yet to do so (Garfield & Damico, 2015). In addition, continued or increased funding for insurance safety nets such as the Children’s Health Insurance Program (CHIP) and Title X can also support contraceptive access across age groups. Furthermore, given women’s reported challenges accessing care, offering the pill over the counter at pharmacies supports continuity of use. Considerations could also be made for offering other self-administered methods like the Nuvaring or patch directly from pharmacies or reconfiguring the DepoProvera injectable to become self-administered like insulin for diabetes care. Similarly, insurers may consider creating guidelines that would limit contraceptive formulary changes whenever possible in support of women’s continuation of trusted and well-liked methods.
Crucially, efforts to improve contraceptive access vis-à-vis the health care system require health care equity, which is severely lacking in the United States (Nelson, 2002). Examining women’s experiences accessing contraception in the context of health care reveals how and to what extent people’s intersecting identities either facilitate or constrain their access to contraception. As evidenced by our findings, most women can and do encounter barriers to contraception. However, less-resourced and racial or ethnic minority women are more likely to confront barriers and face greater challenges to overcoming them. These women are also more likely to experience a combination of such barriers including access issues, limited provider choice, lapsed insurance, and complex health problems. In contrast, we find that more privileged patients who are typically White, higher SES women, are more likely to carry insurance policies that permit them to change doctors, obtain sterilization procedures with fewer restrictions, or pay out of pocket when contraception is not covered.
Women’s intersecting identities also play a particularly central role within their provider interactions. As other scholars have recommended, to support improved patient–provider relationships, rather than standardizing sensitive questions around contraception and pregnancy planning, providers may consider first communicating with patients about their needs and goals in care generally, and contraception specifically, as appropriate (Dehlendorf et al., 2013). In addition, the guidance providers receive around the link between contraception and unintended pregnancy risk may inadvertently motivate them to “over counsel” some or even all women about contraception in ways that researchers have found are highly classed and raced (see Dehlendorf, Ruskin, et al., 2010; Gomez & Wapman, 2017). Consequently, researchers should reflect epistemologically on the impact of their findings about pregnancy risk and contraceptive use and how it may lead to the privileging of some pregnancies while discouraging others. Doing more to contextualize their findings and situate them within larger structural inequalities, for instance, may mitigate such effects (Dehlendorf et al., 2018). Furthermore, contraceptive interventions should consider framing their goals within the context of women’s health more broadly, not just unintended pregnancy specifically. Doing so may empower women to be well-informed contraceptive consumers while also supporting their reproductive autonomy and broader health goals. Indeed, as suggested by the women’s concerns about side effects and general well-being when using contraception, birth control cannot be disaggregated from women’s health overall.
Our findings also elucidate the limitations of providers’ contraceptive knowledge on women’s capacity to enact their contraceptive decisions, especially when inconsistently adopted across medical specializations. Providers should receive ongoing training about all methods, especially among those who do not specialize in women’s health. Moreover, seeing women’s strong preferences for specific methods suggests that clinics should offer counseling about and access to a full range of contraception at their site whenever possible. Several women described how their clinics have now allotted additional time in appointments for contraceptive counseling with great success. This is a promising approach that may allow for more for thoughtful, well-rounded discussions about women’s fertility goals and needs, as well as improve upon provider–patient communication and rapport.
These study results cannot be generalized to all people seeking contraception in the United States. In particular, while these results reflect the experiences of self-identified women, they cannot speak to the experiences or specific needs of trans and nonbinary people although other scholars have recently begun to do so (Gomez et al., 2020; Forsberg & Eliason, 2020). The patient experiences we do highlight provide important and nuanced insights into the contexts in which decisions are made and the effects of health care structures. Moreover, although we did not formally differentiate our data in terms of women’s class or race/ethnicity, we did note the extent to which race, class, and other patient factors may influence women’s experiences and contraceptive decisions. As we discuss throughout the article, women across groups experience insurance-related and provider communication barriers to contraception because of health care. However, less-resourced and marginalized women may face more barriers and encounter undue burden to overcome them, the extent of which should be more systematically explored in future research.
We expose how, and to what extent, medicalizing unintended pregnancy and treating it with contraceptives is as much a barrier to access as it is a solution with important consequences for women’s reproductive health and autonomy. Importantly, we also find that these barriers and their causes are not mutually exclusive. Rather, they are interactional, further complicating the web of influence on women’s decision-making and obligating equally complex, thoughtful solutions that address both structural- as well as individual-level barriers. In both aiding and constraining women’s reproductive health decisions, health care sits at the center of that web.
Footnotes
Declaration of Conflicting Interests
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by a research grant from a private philanthropic foundation. This organization had no involvement in the analysis and interpretation of the data, nor in the decision to submit the article for publication.
