Abstract
Objectives
Gender service utilisation according to ethnicity is largely under-researched. The present research looked at demographics and service user-engagement according to ethnicity of young people accessing a gender service for children.
Method
A total of 2063 (M = 14.19 years, SD = 2.59, assigned male = 556, 1495 assigned female = 1495, no-specification=12) referrals were included in the analysis. Self-defined ethnicity in financial years (FY) 2016–2017, 2018–2019, and referrer-defined ethnicity in FY 2020–2021 were compared between years, to the national UK-population, and child and adolescent mental health service (CAMHS) averages. Numbers of offered, attended and non-attended appointments were compared across the White and the ethnic minority population (EMP).
Results
Across years 93.35% young people identified as White (higher than the CAMHS and national population averages); 6.65% as EMP. Service utilisation was similar in FY 2016–2017. In FY 2018–2019, the EMP subgroup was offered and attended more appointments compared to the White subgroup, ‘did not attended’ average was similar.
Conclusions
The majority of young people self-identified with a White ethnic-background. Service engagement was comparable between the EMP and White ethnicity subgroups in 2016–2017, while the EMP group was offered and attended more appointments in 2018–2019. Due to the low EMP group numbers, findings need to be interpreted with caution.
Introduction
The rise in international referrals to child and adolescent gender services over recent years (Aitken et al., 2015; de Graaf et al., 2019; Kaltiala-Heino et al., 2018) has increased research interest in adolescent transgender health. However, little has been explored regarding service user engagement in relation to ethnicity. Literature acknowledges the diverse understandings of gender held across ethnic communities that have developed through years of cultural practice and/or interpretations of religious texts; however, research lacks in recording the diversity of ethnicity referred to services, and the experiences of gender diverse people from ethnic minority population (EMP) groups (Budge & Pankey, 2016).
Gender and ethnicity are two important aspects of our identity that influence how we perceive the world around us (Frable, 1997). Present notions of cis- and binary gender identification are rooted in Western society, and likely contribute to social stigma, prejudice, and bullying in gender diverse people. These experiences have been linked to associated difficulties such as high levels of distress, anxiety, depression, low mood, and self-harm in some gender diverse young people (de Vries et al., 2011; Di Ceglie et al., 2002; Holt et al. 2016; Skagerberg, Davidson & Carmichael, 2013). Indeed, the theory of intersectionality (Crenshaw, 1990) suggests that our socially constructed identities implicate our experiences of oppression, discrimination, privilege or power. The minority stress model (Levitt & Ippolito, 2014) states that the sum of cumulative effects of such stress can negatively impact the physical and mental health of stigmatised groups of people. Thus, EMP groups who occupy multiple minority identities simultaneously may be exposed to an increased risk of experiencing multiple and cumulative effects of oppression and discrimination (Cyrus, 2017).
The differences in the meaning of gender across different ethnicities and cultures are sometimes conceptualised through two principal philosophies: Western (or ‘White’) and Eastern (or ‘non-White’) (Fernando, 2012). However, complex constructs such as gender could not be fairly represented in such simplistic divisions without diluting the richness of individual differences within these ‘West’ and ‘East’ categories (Fernando, 2012).
Ecklund (2012) illustrated the differences of gender identity development between the Western and Eastern cultures in a case report which reflected on the multiple intersecting identities of a six-year-old assigned male at birth who identified as female, and whose native Korean enculturation by his parents restricted the expressions of his gender diverse feelings while his adopted American cultural identity allowed this (see also Bussey, 2011; Jensen, 2011; Newman, 2002). The parents’ own gender identities and perspectives were based on their own enculturation through Eastern philosophy which emphasises stability, harmony, and interdependence through the establishing and maintaining of the outer world of relationships Dwivedi & Verma, 1996;Fernando, 2012. Such enculturation by parents or caregivers may cause young people from EMP groups to encounter barriers in accessing gender services out of perceived fear of stigma, discrimination, and prejudice from their community. By contrast, the child’s adopted culture placed them at the centre of attention and care (Fernando, 2012) through Western philosophy which is mostly centralised around individualism, independence, self-sufficiency, and assertiveness (Dwivedi and Verma, 1996; Fernando, 2012), this may be a contributing factor to the higher number of young people from White ethnicities seen at Services (as has been previously reported e.g., de Graaf et al., 2019).
From a healthcare perspective, literature shows that EMP groups generally face multiple barriers in accessing relevant healthcare services (Szczepura, 2005), including not being represented enough in healthcare research (e.g. mental health; Brown et al., 2014). This may result in poorer health outcomes, possibly due to the interventions being largely formulated for white ethnic populations (Browne et al., 2014; Cooper et al., 2013; Memon et al., 2016). High numbers of missed appointments (referred to as ‘Did Not Attends’ (DNAs) in healthcare settings) have been well documented in services throughout the National Health Service (NHS) and in Child and Adolescent Mental Health Services (CAMHS) (Abdinasir, 2017; Minty & Anderson, 2004; Mitchell & Selmes, 2007). Non-attendance to clinical sessions may be an important indicator of the barriers experienced by young people and their caregivers. However, there remains a paucity of research looking specifically at DNA rates across different ethnic groups, largely due to poor ethnicity data gathering across healthcare services (Psoinos et al., 2011). Thus, research attending to the intersections of ethnicity and gender of EMP service users, and engagement with gender services is needed.
There is currently no data on the utilisation of gender services according to ethnicity. Therefore, this paper aims to assess the self-defined ethnicity of under 18 year olds who have and who are accessing the children’s NHS Gender Identify Development Service (GIDS), and chart the potential differences in service user engagement between the White and EMP groups. Referrer-defined ethnicity will also be reviewed for newer referrals to the Service.
Method
In this retrospective chart review, referrals accepted by the GIDS in the 2016–2017 and 2018–2019 financial years (1st April-31st March) were assessed to determine self-defined ethnicity and service engagement using the Service’s demographics form provided at the start of attending the Service. For referrals made during the 2020–2021 financial year, referrer-defined ethnicity was used owing to self-defined ethnicity data not yet being available for this group.
All data was anonymised prior to analysis, thus exemption for ethics was confirmed by external and local ethics committees affiliated with the Tavistock and Portman NHS Research and Development Department.
Demographics form
Three versions of the demographics form were used to collect the ethnicity data. Prior to 2018, the GIDS distributed an ethnicity demographics form approved locally by the Trust. This was updated in 2018 to include the same standardised “16+1” ethnicity code list that was used throughout the NHS; a more extensive ethnicity form was adopted again in 2020 (Figure 1). Due to their differences, the ethnicity categories in this paper have been coded based on the standardised “16+1” list. Thus, there were nine instances where the ethnicities collected from the pre-2018 form which did not fall under the “16+1” coding, and so were re-categorised accordingly. Difference between the (a) the pre-2018, (b) the “16+1”, and (c) the extensive demographics form used to collect ethnicity data.
Further demographic information including each young person’s assigned gender at birth, date of birth, year of referral and age at referral to the GIDS was gathered from the Service’s electronic patient record system. Data was also collected on the total number of appointments offered and attended, and the number of DNAs for the 2016–2017 and 2018-2019 groups; this data was not yet available for the 2020–2021 cohort as they were newly referred and had not started attending appointments at the Service at the time of analysis.
Demographic information on religion was available for the 2018–2019 cohort through the newer demographics forms, and therefore was captured as supplementary data.
Descriptive analysis
Categorical data was summarised by providing percentages of young people in each ethnicity category across the three financial years, and compared to the available data held across sectors in the UK (Office of National Statistics, 2011) and in CAMHS (Children’s Commissioner Report, 2016).
Results
Participant demographics
Participant demographics of included referrals across the 2016–2017 and 2018–19 financial year groups.

Breakdown of the included and excluded data for the 2016–2017 and the 2018-2019 groups.

Assigned gender at birth and age breakdown, by ethnicity (White ethnicity verses EMP ethnicity).
Ethnicity breakdown
Ethnicities of children and adolescents, as referrals accepted by the GIDS during the 2016–2017, 2018–2019 and 2020–2021 financial years.
When compared to the latest available national UK child and adolescent population (N = 11,970,367; range=0–17 years) (Office of National Statistics, 2011) Ethnicity from the GIDS compared to the national UK and CAMHS populations.
Religion breakdown
Religion breakdown, as referrals accepted by the GIDS during the 2018–2019 financial year, compared to the national UK population average.
Average number of appointments offered, attended and not attended in 2016–2017 and 2018-2019 groups
Mean number and range of appointments offered, attended and not attended young people accessing the gender service, by ethnicity and financial year.
aThe DNA rate does not reflect appointments which may have been cancelled and/or rescheduled by the Service.
Variation in the number of appointments offered to the 2016–2017 cohort (White ethnicity N = 799; EMP N = 57) suggested that the White ethnicity group were offered, on average, a similar number of appointments to the EMP group (White ethnicity: M = 10.91, SD = 5.92; EMP: M = 10.74, SD = 5.5). The two subgroups also attended a similar number of appointments (White ethnicity: M = 8.21, SD = 4.81; EMP: M = 8.09, SD = 4.35). Thus, a comparable attendance rate was observed, out of the offered appointments, between the White ethnicity group (75.29%) and the EMP group (75.33%). The average number of DNAs was also similar between the White ethnic group (M = 0.57, SD = 0.9; 5.22% of offered appointments) and the EMP group (M = 0.67, SD = 0.9; 6.21% of offered appointments).
In the 2018–2019 cohort (White ethnicity N=398; EMP N=26), the EMP group were offered (M = 10.65, SD = 6.42) and attended (M = 9.12, SD = 5.29) more appointments compared to the White ethnicity group on average (M = 7.77, SD = 5.97 and M = 6.59, SD = 2.27, respectively). A similar attendance rate, out of the number of appointments offered, between the two subgroups was observed (White ethnicity: 84.83%; EMP: 85.56%). In terms of DNA appointments, the White (M = 0.55, SD = 0.92; 7.12% of offered appointments) and the EMP (M = 0.88, SD = 1.36; 8.30% of offered appointments) subgroups also had comparable averages.
The relatively low DNAs found in the overall dataset may be partly explained by the unique positioning of the Service as the only service of its kind in the UK. Individuals are required to attend if they are seeking nationally funded specialist support for gender identity exploration, and, in some cases, physical treatment, which is not typically accessible through solely attending primary healthcare services. Comparing the figures across all ethnicity groups, lower DNA rates were observed in the 2018–2019 cohort compared to the 2016–2017 cohort. This may be due to a move to telemedicine appointments owing to the COVID-19 pandemic, potentially increasing accessibility in attending appointments.
Discussion
This research aimed to understand service user engagement in a UK child and adolescent gender service based on ethnicity demographics. The results suggest that the majority of young people accessing the Service were of a White ethnicity background. This is higher than the national youth population and the CAMHS averages (Office of National Statistics, 2011; Children’s Commissioner Report, 2016). The average numbers of appointments offered, attended, and not attended were found to be similar across the White and EMP groups in the 2016-2017 group; while in the 2018-2019 group, the EMP group were offered and attended more appointments compared to the White ethnicity group, but the average DNA rates were similar.
It is important to note in the present research the low rates of young people from EMP groups referred and attending the gender service as compared to other CAMHS. de Graaf et al. (2019) suggested differences may be due to ‘help-seeking’ and ‘help-needing’ behaviours; feelings of shame and/or stigma, and cross-cultural differences in the conceptualisation of gender may contribute towards the under-representation of several EMP groups seen in GIDS. For instance, caregivers of young people might act as ‘gatekeepers’ to specialist gender services based on their understanding and interpretation of their child’s difficulties in light of their core values and beliefs (Arai et al., 2014; de Graaf et al., 2019). However, in the absence of research comparing parental attitudes towards gender diverse young people between and within different ethnicity groups (including White, and White British ethnicities), it should not be assumed that this potential barrier applies only to gender diverse young people from EMP groups.
The model of healthcare in the UK may act as an additional barrier for young people in EMP groups seeking gender-based care. Typically, primary care providers, such as general practitioners (GPs), act as referrers into specialist services, but individuals from EMP groups may experience difficulties in accessing specialist services through such a pathway. Literature suggests individuals from EMP groups are less likely to be registered with primary care services and seek professional treatment less frequently than the White ethnicity groups due to, for example, attitudinal barriers and fear of discrimination (Bhui & Bhugra, 2002; Bhui et al., 2003; Bradby et al., 2007). This is concerning as evidence suggests individuals from EMP groups may be more susceptible to certain mental health difficulties and least likely to access support (Goodman et al., 2008; Grey et al., 2013; Weich et al., 2004). Consistent with the minority stress model, young people occupying a dual minority status are at an increased risk of experiencing micro- and macro-aggressions that may, in some cases, effectuate mental health difficulties (Balsam et al., 2011; Meyer, 2003). Moreover, individuals from EMP groups may experience challenges in terms of their gender exploration due to cultural, ethnic and or community beliefs and values regarding gender appropriate behaviour (de Graaf et al., 2019).
Of particular note, it is vital to consider the difficulties for EMP groups in engaging with service providers. Language barriers and concerns around practitioners of a different ethnicity have been raised as important. For instance, some EMP individuals have voiced concerns around the capacity of practitioners of different ethnicities to relate to their experiences (Kovandžić et al., 2011). This may be linked to stereotypical views perceived to be held by care providers, and minority ethnic group experiences of racism within the healthcare setting. This is reflected in increased utilisation, lower drop-out rates, favourable treatment outcomes and higher satisfaction in some EMP service users assigned to healthcare professionals of their own ethnicity (for example, LaVeist & Nuru-Jeter, 2002; Meghani et al., 2009; Memon et al., 2016; Ziguras et al., 2003). However, this may prove difficult when accessing care through the NHS, where 79.2% of staff self-identify as having a white ethnicity (NHS Workforce, 2020). It is important to note that these studies were not carried out in relation to gender identity, and discussing gender with healthcare professionals holding the same ethnic identity may instead potentially close down exploration for fear of judgement owing to possible shared cultural and/or ethnic values and beliefs. It is also important to note that, although lower numbers of EMP young people were seen to attend the gender service, those that did were offered and attended a similar number of appointments to White ethnicity groups.
Limitations and future directions
While this retrospective chart review is the first of its kind, the low numbers of individuals within each EMP group means that the findings should be interpreted with caution. Statistical analysis on this data was not possible due to the small numbers within each EMP group, and so only descriptive analysis are presented. Future research using larger samples of EMP groups including statistical testing and comparisons with CAMHS populations to further explore distinctions between groups is warranted.
The data was categorised based on the “16 + 1” system used by the NHS; this information is collected based on ‘self-defined’ ethnicity directly from service users (NHS Data Model and Dictionary, 2020). Ethnicity is defined using several variables (das Nair and Thomas, 2012a). A lack of a standardised definition (Phinney, 1990) can not only make ethnicity a difficult construct to measure (McKenzie and Crowcroft, 1994), but also reduces the accuracy and reliability of collected data; for example, four in 100 people changed their answer regarding their ethnicity between the 2001 and 2011 Census (Jivraj & Simpson, 2015). In the case of data presented here, we are mindful that the ethnicity categories reported on conceal detail regarding the diversity of individuals within each group (Fernando, 2012). For example, the overrepresentation of the White ethnicity group may be due to this category being interpreted more as a broad ‘racial’ identity rather than specifically related to ethnicity (de Graaf et al., 2019); therefore, it is highly likely that this group includes other White minority or marginalised (or ‘invisible’) groups. Equally, the EMP sub-categories also cluster together individuals who likely have a broad range of cultural and ethnic backgrounds, religious beliefs and personal values. Future studies investigating the detailed variability within each ethnicity group which could contribute towards a better understanding gender identity development are required.
Work around the relationship between gender identity and ethnicity of young people from a mixed heritage is also needed. Highlighting the works of others, Sewell (2008) noted that people from some categories of Mixed Heritage have considerably poorer experiences within the prominent context of complexities in identity development, parental ambivalence about ethnic identity, family conflict, dislocation within society, and overlooked identity. Qualitative studies assessing what gender identity means for the children and young people from EMP backgrounds, especially in terms of their enculturation and their experiences of accessing gender based care, are called for.
It is important for healthcare professionals to consider the impact of Western gender labels and norms, identity markers, or references for EMP groups accessing gender services, especially if EMP groups cannot relate to these (das Nair and Butler, 2012). It is equally important to consider that cultural identity in thinking about gender may be important for some EMP youth exploring gender, but not for others. For EMP young people who feel that ethnicity is not a factor in their gender exploration, suggestions for qualitative studies exploring other identities, such as religion, have been proposed (Charmaraman & Grossman, 2010).
The socio-economic status (SES) of the cohort reviewed in this work was also not known. Data exists showing that poorer health outcomes for EMP groups are linked to lower SES (Jivraj & Simpson, 2015; Mason, 2000). This may act as a contributing factor to some young people’s experience in accessing specialist gender services. Future research is required to understand the link between SES, EMP groups and access to gender services in young people.
Lastly, the dynamic between religion and gender identity development was not explored here but should be considered in future research. Despite being a separate construct, religion can be a component of a definition of ethnicity and can form an important part of one’s identity. For some gender diverse people their religion can be a great source of comfort and support; but for others these identities may be at conflict, causing further psychological distress (das Nair and Thomas, 2012b).
Conclusion
Data from the present study indicate that the majority of young people accessing the GIDS were identified with a White ethnicity background compared to an EMP background across three different financial year cohorts. Regarding service engagement, the average number of offered, attended and not attended appointments were comparable between the White and EMP subgroups in the 2016–2017 cohort. In the 2018–2019 cohort, the EMP subgroup was offered and attended more appointments on average, but the not attended appointment rate was similar to the White ethnicity group. However, due to the smaller sample size of the EMP group across both the analysed financial year cohorts, these findings need to be taken with caution. Further research is recommended to explore why EMP groups may be accessing gender services less than the White ethnicity group.
Footnotes
Declaration of conflicting interests
The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Funding
The author(s) received no financial support for the research, authorship, and/or publication of this article.
