Abstract
This study supports the promotion and integration of standard family-centered measures (FCMs) into practice to enhance providers’ expertise and quality of care and to guide family-centered care (FCC) interventions and monitor their outcomes.
Families shape the context of their child’s health and development. Thus, family-centered care (FCC) is recognized as a best practice in child and family care (American Occupational Therapy Association, 2020; Kokorelias et al., 2019; Nickel et al., 2018). The universal core aspects of FCC are collaboration and communication between families and professionals, exchange of knowledge and education, consideration of family contexts, and supportive policies and procedures (Kokorelias et al., 2019), all of which are needed to establish partnerships in the child’s care. Effective FCC involves continuity across all aspects of care from initial contact with a family through examination, diagnosis, intervention planning, intervention delivery, and discharge from services (King & Chiarello, 2014).
Family-centered measures (FCMs) can facilitate providers’ abilities to learn about a family’s contexts, needs, priorities, strengths, expectations, and perceptions of the care they receive. Yet, FCMs are not routinely used in practice and research, limiting the ability to characterize family needs and desires and evaluate the effectiveness of interventions (Kokorelias et al., 2019). FCMs include process and outcome measures. Process measures assess the quality of the FCC services provided, including family–provider communications and shared decision making (King et al., 2004; Woodside et al., 2001). Outcome measures include semistructured interviews to set shared intervention goals (e.g., Honaker et al., 2012; Law et al., 2019) and questionnaires that identify parents’ expectations and perceptions of goal achievement (e.g., Waldman-Levi et al., 2017) or the family’s concerns and strengths (e.g., Crnic & Booth, 1991; Fingerhut, 2013; Freiberg et al., 2014). The Appendix includes more details on the FCMs used in this study.
Despite the importance of standardized measures, they are not frequently integrated into general practice (Duncan & Murray, 2012; Romli et al., 2019), demonstrating the difficulty of translating theory into practice. Workshops are reported to increase awareness and provide knowledge of instruments, but they are only a first step in closing the gap between knowing and doing (Ketelaar et al., 2008). Experiential learning may reduce this gap, foster skill acquisition, and enhance self-efficacy for health care providers, including occupational therapists (Coker, 2010; Park et al., 2018). Experiential learning incorporates active experience to apply skills, reflect on the process, and learn from the results (Bandura, 1986; Knecht-Sabres, 2013; Kolb et al., 2014).
In this study, we measured the rate of FCM use and evaluated the effectiveness of experiential learning and reflection in increasing the use of FCMs. In Phase 1, we measured pediatric providers’ family centeredness and their routine use of standardized FCMs. In Phase 2, we evaluated whether experience in administering FCMs would be more effective in changing providers’ FCC practices than knowledge acquisition alone.
Method
This was part of a larger study (Gafni-Lachter & Ben-Sasson, 2022) approved by the Ethics Committees of the University of Haifa (Approval 263/16) and the Israel Ministry of Education (Approval 9750). Phase 1 was descriptive, and Phase 2 was a two-group, preintervention–postintervention design.
Participants
Phase 1 included 135 practitioners: 88 occupational therapists, 29 speech-language pathologists, 14 physical therapists, and 4 art therapists, working in pediatric settings. Seventy (52%) worked in schools, 61 (45%) in outpatient clinics, and 4 (3%) in other settings (hospital or hostel). Practitioners had an average 9.6 yr (SD = 7.15, Mdn = 8, range = 1–35) of clinical experience. Participants were recruited from among providers enrolled in workshops offered by a continuing education center.
In Phase 2, 44 Phase 1 participants enrolled in an FCC training and were assigned to two cohorts on the basis of their choice of training times. All were female occupational therapists working primarily in the school system. Group 1 had an average of 13.9 yr (SD = 8.1, range = 1–27) of experience, and Group 2 had 12 yr (SD = 8.03, range = 1–33) of experience. All participants completed the training.
Instrument
The Measure of Processes of Care–Service Provider (MPOC–SP; Woodside et al., 2001) is a 27-item self-report questionnaire that assesses health care providers’ perceptions regarding their use of family-centered behaviors. The MPOC–SP evaluates showing interpersonal sensitivity, communicating specific information about the child, treating people respectfully, and providing general information. The frequency of each behavior is rated on a scale ranging from 1 (not at all) to 7 (very great extent). The Hebrew MPOC–SP used in this study was validated and had good internal consistency across domains (α = .65–.89) in Schenker et al. (2016) and in this study (α = .71–.86). Participants were also asked to rate how often they use standard FCMs, using the same 7-point scale.
Procedure
Participants attending the continuing education workshop were invited to enroll in Phase 1. Consenting participants completed a paper form of the Hebrew MPOC–SP and rated how frequently they used FCMs. In Phase 2, 44 of the Phase 1 participants were enrolled in a 30-hr continuing education training titled “Better Together” (Gafni-Lachter & Ben-Sasson, 2022). The training was delivered in two cohorts (22 participants in each cohort). Part of the Better Together training included a 2-hr workshop on FCMs in which participants were introduced to seven FCMs (see the Appendix). The FCMs were selected on the basis of the availability of purchasing licensure or author approval. Participants received the forms and guidelines for each measure and were asked to consider their clients and rate each measure’s usefulness for them. Finally, participants met in small groups and debated the benefits and challenges of using FCMs in their practices. Table 1 presents the clinical reasoning questions used to analyze each FCM.
Clinical Reasoning Questions Used to Evaluate an FCM
Note. Each FCM is rated on a scale ranging from 0 (not at all) to 5 (strongly agree). FCM = family-centered measure. See the Appendix for examples of FCMs to evaluate.
Cohort 1 participants (the experimental group) had an additional experiential task: they were required to select one FCM, administer it to a family in their care, and submit a report based on three reflective questions: What did you learn from administering the measure? How does this experience align with your previous perceptions of FCM use and FCC? How will these lessons inform your future work with families?
Cohort 2 participants (the control group) did not complete the experiential task. One month after the conclusion of the training, all Phase 2 participants completed a posttest MPOC–SP and reported their frequency of FCM use.
Data Analysis
Data were analyzed using IBM SPSS Statistics (Version 25). Spearman’s ρ was used to identify correlations between scores. Phase 2 data were analyzed using the related-samples Wilcoxon signed-rank test to determine the change in FCM use in each group. A Mann–Whitney U test was used to compare changes between groups.
Results
Table 2 presents participants’ mean scores on the four MPOC–SP domains and their frequency of FCM use. Most participants reported using FCMs not at all (50%) or to a very small extent (26%). Only 13% reported using FCMs to a fairly great or very great extent, and 11% reported using them to a small extent. Correlations between frequency of FCM use and all MPOC–SP domains were weak but significant. Exploratory analysis to examine whether FCM use was associated with participant demographics demonstrated no significant correlation with years of experience or across practice settings.
MPOC–SP, FCM Use, and Spearman Correlations
Note. FCM = family-centered measure; MPOC–SP = Measure of Processes of Care–Service Provider.
All ps < .01.
On the basis of the Wilcoxon signed-rank test, Group 1’s median posttest rankings were higher than their pretest rankings (Z = 176.0, p = .001; 17 participants had a significant increase). Pretest-to-posttest differences were not significant for Group 2 (the control group; Z = 68.5, p = .98; 8 participants had a significant increase). Mann–Whitney U test results confirmed that the difference score was greater for Group 1 (U = 3.54, p = .012; Table 3).
Within- and Between-Groups Differences in FCM Use
Note. FCM = family-centered measure.
Number of participants with increased posttest or decreased posttest FCM score (remainder of participants were without significant change).
p ≤ .05.
Discussion
Although FCC and use of standard measures are considered best practices in occupational therapy, this is the first study to evaluate a baseline and how to effectively promote FCM use. Our findings demonstrate a major knowledge translation gap between the theory and practice of FCC. Although most providers in our sample considered themselves to be family-centered practitioners, they rarely used FCMs. In our sample, 26% reported using FCMs infrequently, and 13% reported using them often. Our findings are congruent with results showing minimal use of standard measures (Duncan & Murray, 2012). Providers who consider themselves to be more family centered were more prone to use FCMs. The rate of FCM use in the current study did not depend on years of experience or practice setting. We conjecture that infrequent use of FCMs is due to lack of awareness of the relevance and contribution of these measures to practice. Thus, we explored whether experiential learning could enhance the integration of FCMs into practice.
The Phase 2 results confirmed our hypothesis that experiential learning and reflection are likely to lead to the integration of a new skill into practice. Participants who administered a measure and reflected on the experience applied measures in practice more than did participants who were introduced to FCM only via an interactive workshop. These findings are consistent with evidence of the value of experiential learning and reflection (Coker, 2010; Ketelaar et al., 2008; King, 2009; Park et al., 2018).
This study isolated experiential learning as the independent variable in a comparative design between two cohorts. The results were astounding: Only providers who fully administered an FCM to a client and reflected on its value reported a significant increase in the rate of FCM use 1 mo later. In the workshop, all participants actively analyzed and compared several FCMs. However, those who gained first-hand experience administering and analyzing an FCM and recognized its value in enhancing their relationship with the family were more able to integrate these new skills into their practice.
Reflection appears to be the change mechanism that leads to the acquisition of new self-knowledge, content knowledge, and procedural knowledge, which promote expertise and facilitate professional reasoning (Unsworth & Baker, 2016). Health care organizations can promote expertise in FCC by providing knowledge of, access to, and time to administer FCMs and reflect on their use.
This study had several limitations. To accommodate participants’ time preferences, randomization was not possible, which may reduce the study’s internal and external validity. Participants were recruited from a pool of highly motivated professionals who enrolled in the training on the basis of their interest in working with families. The dedication to learning and the changes observed may not predict changes in the general provider population. The measures used to identify changes in the practitioners’ practice relied on self-reports without additional reports from parents, colleagues, or supervisors. It would be important to obtain an external assessment of the carryover of the training into practice.
Future researchers should partner with families, providers, and managers to evaluate means to strengthen FCC at the organizational, provider, and family levels. Qualitative designs can deepen the understanding of mechanisms that enhance reflective practices related to FCC and identify factors that contribute to positive perceptions of FCM use in practice.
Implications for Occupational Therapy Practice
This study has the following implications for occupational therapy practice: ▪ The use of standard FCMs promotes family– provider partnerships and understanding of the family’s needs and priorities. ▪ Providers should use clinical reasoning to judge the relevance of an FCM to their practice. ▪ Simply learning about FCMs is not sufficient for integrating them into practice; providers should administer standard FCMs and reflect on the process individually or in groups. ▪ Although the continuing education workshop took place in person, it could be delivered online with the experiential components applied in each learner’s practice setting.
Conclusions
Experiential learning and reflection are effective and low-cost strategies to enhance the use of FCMs in clinical practice. Managers, educators, training developers, and researchers are encouraged to integrate experiential learning into professional training to achieve effective outcomes that bring real change to practice.
Footnotes
Acknowledgments
This study was made possible thanks to the generous support of the Fulbright Israel foundation.
Family-Centered Measures Used in the Study
| Name and FCC Component Evaluated a | Authors/Date and Country | Measure Type | Aim | Reliability | Validity | Response Scale |
|---|---|---|---|---|---|---|
| 20-item Measure of Processes of Care (MPOC–20), Measure of Processes of Care–Service Provider (MPOC–SP; 1, 3, 4) |
King et al. (2004); Woodside et al. (2001)
Canada |
20-item parent questionnaire and parallel 27-item professional self-report | Service outcome: family-centeredness of services, as perceived by parent and health care professionals | MPOC–20: αs = .83–.90; test–retest reliability (ICC): .81–.86 MPOC–SP: αs = .76–.88; test–retest reliability (ICC): .79–.99 |
The MPOC–20 has good concurrent validity, significant positive correlations with a measure of satisfaction, and a negative correlation with a single-item stress variable (King et al., 2004). The MPOC–SP is a discriminating measure of professional caregiving behaviors (Woodside et al., 2001). |
7-point scale ranging from 1 (not at all) to 7 (to a very great extent) |
| Canadian Occupational Performance Measure (COPM; 1, 2) |
Law et al. (2019)
b
Canada |
Semistructured interview-based rating scale | Family and client needs: Prioritize self-care, productivity, and leisure goals and change | Internal reliability and test–retest reliability | Validated against functional, psychological, and social functioning measures. Concurrent, criterion, convergent, divergent, construct, and content validity consistently support that it measures occupational performance (Carswell et al., 2004). | Responses are documented and then ranked on a 10-point scale ranging from 1 (not at all) to 10 (very high) according to importance, performance, and satisfaction with performance |
| Family L.I.F.E. (Looking into Family Experiences) (1, 2) |
Honaker et al. (2012)
b
United States |
Semistructured interview and time diary | Family needs: family priorities and perceived change in routines, rituals, and occupations | Test–retest r = .92 | Face, content, and construct validity and convergent validity were established (Honaker et al., 2012). | Open-ended questions |
| Parents’ Satisfaction During Intervention Questionnaire (PAPI–II), Satisfaction Post–Intervention Questionnaire (PAPI–III; 1, 2) |
Waldman-Levi et al. (2017)
b
Israel |
Parents complete questionnaires preintervention, during intervention, and postintervention | Family needs: parents’ expectations and satisfaction with occupational therapy intervention for their children; includes measures of the child’s function and parental involvement | αs = .48–.80 | Moderate correlations found between the PAPI–II and PAPI–III and child outcomes in treatment and with COPM (Waldman-Levi et al., 2017). | Rated on a 5-point scale ranging from 1 (very little) to 5 (very much). |
| Parent Empowerment and Efficacy Measure (2) |
Freiberg et al. (2014)
Australia |
20-item parent questionnaire | Family needs: parent empowerment and perceptions of being a good parent and use of networks. | α = .92, test–retest reliability = .84 | The measure has high convergent and concurrent validity (Freiberg et al., 2014). | Responses are made on a 10-point scale ranging from 1 (This sounds nothing like me) to 10 (This sounds exactly like me). |
| Parenting Daily Hassles Scale (2) |
Crnic & Booth (1991)
United States |
20-item parent questionnaire | Frequency and intensity of events of challenging child behavior or parenting tasks | αs = .81–.90 (Crnic & Booth, 1991) | NA | Each item is rated on a 4-point scale ranging from 1 (rarely) to 4 (constantly), and intensity is rated on a 5-point scale ranging from 1 (no hassle) to 5 (big hassle). |
| Life Participation for Parents (LPP; 2) |
Fingerhut (2013)
b
United States |
23-item parent questionnaire | Family needs: satisfaction with the effectiveness and efficiency of the parents’ own participation in activities and occupations | α = .90, r = .89 | The LPP correlated moderately with the Parenting Stress Index–Short Form (Abidin, 1990; r = .54) | Items are rated on a 5-point scale ranging from 1 (strongly agree) to 5 (strongly disagree), with an option for comments. |
Note. FCC = family-centered care; ICC = intraclass correlation; NA = not applicable.
Components of FCC (according to Kokorelais et al., 2019) addressed are as follows: 1 = collaboration; 2 = family contexts; 3 = dedicated policies and procedures; 4 = education and information.
All or some of the measure’s developers are occupational therapists.
