Search results: Sage Journals

Free accessResearch articleFirst published

The National Spina Bifida Patient Registry: Past,present,and future

Judy Thibadeau

Journal of Pediatric Rehabilitation Medicine

Open accessDiscussionFirst published January, 2026

Congenital upper limb difference patient registries: characteristics,comparisons and recommendations

David McCombe, Lindley Wall, Charles Goldfarb [...]

Journal of Hand Surgery (European Volume)

Free accessMeeting reportFirst published May, 2011

Data Standards in Diabetes Patient Registries

Rachel L. Richesson

Journal of Diabetes Science and Technology

Open accessResearch articleFirst published 2026

Myotonic dystrophy family registry. The patient experience

Sofia Olmos, Danny Kuei, Kleed Cumming [...]

Journal of Neuromuscular Diseases

Available accessOtherFirst published March, 2009

Clinical Trial Registries: A Survey of Patient Advocate Group Perceptions

Jacqueline Sayers

Therapeutic Innovation & Regulatory Science

Available accessResearch articleFirst published April, 2025

The FORWARD Psoriasis Registry: Patient-Reported Outcomes in a Novel Psoriasis Registry and Comparison of Traditional,Dermatologist-Led Enrollment With Web-Based Patient Enrollment

William B. Song, Kaleb Michaud, Sarah L. Lonowski [...]

Journal of Psoriasis and Psoriatic Arthritis®

Available accessResearch articleFirst published April, 2008

Multicenter Registry of Balloon Catheter Sinusotomy Outcomes for 1,036 Patients

Howard L. Levine, Anthony P. Sertich, Douglas R. Hoisington [...]

Annals of Otology,Rhinology & Laryngology

Open accessResearch articleFirst published October, 2025

Ethical considerations for conducting research with transgender and gender-diverse patient registries: Balancing our need for evidence with patient vulnerability

Laura Stamm, Brooke A. Levandowski, Ahona Shirin [...]

Journal of Public Health Research

Open accessResearch articleFirst published 2026

The PBC Ireland patient registry: study protocol for a national platform on primary biliary cholangitis

Gerry Nesbitt, Alexandra Curley

Therapeutic Advances in Rare Disease

Available accessResearch articleFirst published February, 2020

Positive predictive value of acute and chronic pancreatitis diagnoses in the Danish National Patient Registry: A validation study

Jakob Kirkegård, Marie R. Mortensen, Ida R. Johannsen [...]

Scandinavian Journal of Public Health

Free accessResearch articleFirst published

The National Spina Bifida Patient Registry: Past,present,and future

Judy Thibadeau

Journal of Pediatric Rehabilitation Medicine

Open accessDiscussionFirst published January, 2026

Congenital upper limb difference patient registries: characteristics,comparisons and recommendations

David McCombe, Lindley Wall, Charles Goldfarb [...]

Journal of Hand Surgery (European Volume)

Free accessMeeting reportFirst published May, 2011

Data Standards in Diabetes Patient Registries

Rachel L. Richesson

Journal of Diabetes Science and Technology

Open accessResearch articleFirst published 2026

Myotonic dystrophy family registry. The patient experience

Sofia Olmos, Danny Kuei, Kleed Cumming [...]

Journal of Neuromuscular Diseases

Available accessOtherFirst published March, 2009

Clinical Trial Registries: A Survey of Patient Advocate Group Perceptions

Jacqueline Sayers

Therapeutic Innovation & Regulatory Science

Available accessResearch articleFirst published April, 2025

The FORWARD Psoriasis Registry: Patient-Reported Outcomes in a Novel Psoriasis Registry and Comparison of Traditional,Dermatologist-Led Enrollment With Web-Based Patient Enrollment

William B. Song, Kaleb Michaud, Sarah L. Lonowski [...]

Journal of Psoriasis and Psoriatic Arthritis®

Available accessResearch articleFirst published April, 2008

Multicenter Registry of Balloon Catheter Sinusotomy Outcomes for 1,036 Patients

Howard L. Levine, Anthony P. Sertich, Douglas R. Hoisington [...]

Annals of Otology,Rhinology & Laryngology

Open accessResearch articleFirst published October, 2025

Ethical considerations for conducting research with transgender and gender-diverse patient registries: Balancing our need for evidence with patient vulnerability

Laura Stamm, Brooke A. Levandowski, Ahona Shirin [...]

Journal of Public Health Research

Open accessResearch articleFirst published 2026

The PBC Ireland patient registry: study protocol for a national platform on primary biliary cholangitis

Gerry Nesbitt, Alexandra Curley

Therapeutic Advances in Rare Disease

Available accessResearch articleFirst published February, 2020

Positive predictive value of acute and chronic pancreatitis diagnoses in the Danish National Patient Registry: A validation study

Jakob Kirkegård, Marie R. Mortensen, Ida R. Johannsen [...]

Scandinavian Journal of Public Health