Developments in end-of-life and palliative care social work

Abstract

English

Palliative care social work has developed primarily as a specialist health-related form of clinical social work. However, the resource-intensive modernist medicalized practice of Western countries has been culturally inappropriate elsewhere. Broader end-of-life care and community education outside healthcare settings offers opportunities to develop palliative care social work in the direction of social development practice.

French

Le travail social de soin palliatif s’est au départ développé en tant que forme particulière de travail social clinique en relation avec la santé. Toutefois, la pratique médicalisée moderniste et intensément dotée en ressources des pays occidentaux, a parfois été culturellement inappropriée ailleurs. Plus largement le soin de fin de vie et l’éducation communautaire en dehors des dispositifs de soins de santé offrent des opportunités de développer le travail social de soin palliatif dans le sens des pratiques de développement social concernées.

Spanish

El trabajo social en el campo del cuidado paliativo se ha desarrollado primariamente como una especialidad del trabajo social clínico relacionado con la salud. Sin embargo, la práctica medicalizada y muy cara de las sociedades occidentales, no es apropiada culturalmente en otros lugares. Un cuidado al final de la vida más amplio, conectado a la educación de la comunidad, y al margen de las organizaciones médicas, ofrece oportunidades de desarrollar un trabajo social de cuidado paliativo que conduzca a una práctica de desarrollo social.

Keywords

clinical social work end-of-life care health promotion medicalization palliative care

References

Adler, N.E. and A.E.K. Page , eds (2008) Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. Washington, DC: National Academies Press.

Askeland, G. and M. Payne (2006) `Social Work Education's Cultural Hegemony', International Social Work 49(4): 731-43.

Aulino, F. and K. Foley (2001) `The Project on Death in America', Journal of the Royal Society of Medicine 94: 492-5.

Beder, J. (2006) Hospital Social Work: The Interface of Medicine and Caring. New York: Routledge .

Beresford, P. , L. Adshead and S. Croft (2007) Social Work, Palliative Care and Service Users: Making Life Possible. Philadelphia, PA: Jessica Kingsley.

Bern-Klug, M. and K. Ellis (2004) `End of Life Care in Nursing Homes', in J. Berzoff and P. Silverman (eds) Living with Dying: A Handbook for End-of-Life Healthcare Practitioners, pp. 628-41. New York: Columbia University Press.

Berzoff, J. and R. Silverman , eds (2004) Living with Dying: A Handbook for End-of-Life Healthcare Practitioners. New York: Columbia University Press.

British Psychological Society (BPS) (2008) The Role of Psychology in End of Life Care. Leicester : BPS.

Clark, D. and M. Wright (2003) Transitions in End of Life Care: Hospice and Related Developments in Eastern Europe and Central Asia. Buckingham : Open University Press.

10.

Clausen, H. , M. Kendall , S. Murray , A. Worth , K. Boyd and F. Benton (2005) `Would Palliative Care Patients Benefit from Social Workers Retaining the Traditional "Casework" Role rather than Working as Care Managers? A Prospective Serial Interview Study', British Journal of Social Work 35: 277-85.

11.

Council of Europe (1999) `Recommendation 1418: Protection of the Human Rights and Dignity of the Terminally Ill and the Dying'. Available online at: http://assembly.coe.int/Main.asp?link=/Documents/AdoptedText/ta99/EREC1418.htm (accessed 30 October 2008).

12.

Department of Health, UK (DoH) (2008) End of Life Care Strategy: Promoting High Quality Care for All Adults at the End of Life. London Department of Health. Available online at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_086277 (accessed 2 March 2009 ).

13.

Fielding, R. and C.L.W. Chan , eds (2000) Psychosocial Oncology and Palliative Care in Hong Kong: The First Decade. Hong Kong : Hong Kong University Press.

14.

Guzzetta, C. (1996) `The Decline of the North American Model of Social Work Education', International Social Work 39(3): 301-15.

15.

Howarth, G. (2007) Death and Dying: A Sociological Introduction. Cambridge: Polity Press.

16.

Katz, J.S. and S. Peace , eds (2003) End of Life in Care Homes: A Palliative Care Approach. Oxford: Oxford University Press.

17.

Kellehear, A. (1999) Health-Promoting Palliative Care. Melbourne: Oxford University Press.

18.

Kellehear, A. (2005) Compassionate Cities: Public Health and End-of-life Care. New York: Routledge.

19.

Lynn, J. (2000) `Learning to Care for People with Chronic Illness Facing the End of Life', Journal of the American Medical Association 284: 2508-11.

20.

Meier, D.E. and L. Beresford (2008) `Social Workers Advocate for a Seat at the Palliative Care Table', Journal of Palliative Medicine 11(1): 10-14.

21.

Midgley, J. (1981) Professional Imperialism: Social Work in the Third World. London: Heinemann.

22.

Midgley, J. (1997) Social Welfare in Global Context. Thousand Oaks, CA: Sage.

23.

Monroe, B. (2004) `Social Work in Palliative Medicine', in D. Doyle , G. Hanks , N. Cherny and K. Calman (eds) Oxford Textbook of Palliative Medicine, 3rd edn, pp. 1007-17. Oxford : Oxford University Press:

24.

Monroe, B. , P. Hansford , M. Payne and N. Sykes (2007) `St Christopher's and the Future', Omega 56(1): 63-75.

25.

Monroe, B. and F. Sheldon (2004) `Psychosocial Dimensions of Care', in N. Sykes , P. Edmonds and J. Wiles (eds) Management of Advanced Disease, pp. 405-37. London: Arnold.

26.

National Association of Social Workers (NASW) ( 1994) Client Self-determination in End-of-life Decisions. Washington, DC: NASW.

27.

Nasw (2003) Standards for Social Work Practice in Palliative and End of Life Care. Washington, DC: NASW.

28.

National Institute for Clinical Excellence (NICE) (2004) Improving Supportive and Palliative Care for Adults with Cancer: The Manual. London: National Institute for Clinical Excellence.

29.

Open Society Institute (OSI) (2004) Transforming the Culture of Dying: The Project on Death in America, October 1994 to December 2003. New York: Open Society Institute.

30.

Reith, M. and M. Payne (2009) Social Work in End-of-life and Palliative Care . Chicago: Lyceum.

31.

Saunders, C. (2001) `Social Work and Palliative Care - the Early History' , British Journal of Social Work 31(5): 791-9.

32.

Small, N. (2001a) `Theories of Grief: A Critical Review', in J. Hockey , J. Katz and N. Small (eds) Grief, Mourning and Death Ritual, pp. 19-48. Buckingham: Open University Press.

33.

Small, N. (2001b) `Social Work and Palliative Care', British Journal of Social Work 31(6): 961-71.

34.

Smith, C. (1982) Social Work with the Dying and Bereaved. Basingstoke: Macmillan.

35.

World Health Organization (WHO) (1990) Cancer Pain Relief and Palliative Care: Report of a WHO Expert Committee, Technical Report 804. Geneva: World Health Organization.

36.

WHO (2004) `World Health Organization Supports Global Effort to Relieve Chronic Pain'. Geneva : WHO. Available online at: http://www.who.int/mediacentre/news/releases/2004/pr70/en/index.html (accessed 30 October 2008).

37.

WHO (2008a) `Palliative Care' . Geneva: WHO. Available online at: http://www.who.int/cancer/palliative/en/ (accessed 30 October 2008).

38.

WHO (2008b) `WHO Definition of Palliative Care'. Geneva: WHO . Available online at: http://www.who.int/cancer/palliative/definition/en/ (accessed 30th October 2008).

39.

Wright, M. , J. Wood , T. Lynch and D. Clark (2006) Mapping Levels of Palliative Care Development: A Global View. Lancaster: International Observatory on End of Life Care. Available online at: http://www.eolc-observatory.net/global/pdf/world_map.pdf (accessed 31 October 2008).