Abstract
We will present a novel intervention for adults with developmental disabilities based on tenets of the clubhouse model and self-determination theory. We demonstrate how existing spaces can be used to support transition skill development.
Primary Author and Speaker: Melanie Wright
Contributing Authors: Aaron Dallman
Adults with developmental disabilities (DD) have poor transition outcomes, like reduced self-determination, social integration, and independent living; few evidence-based interventions exist to support these critical skills in this population. The purpose of this study was to determine the efficacy of the Clubhouse model paired with self-determination theory tenets and community-centered values in promoting work-related self-determination and social health (i.e., belonging) for adults with DD. The Clubhouse model is an evidence-based, egalitarian approach where the therapist and client collaborate on work-related tasks in a work-like setting. Our research question: how does the Clubhouse model operate within the DD population, and what processes unfold during the intervention, guided our approach. To answer this, we leveraged University spaces with adaptations to fit infrastructure limitations (e.g., classes), to implement an IRB-approved focused ethnographic research study of our high-intensity (2-hour, weekly) in-person intervention. We hypothesized that the intervention’s group-based and work-ordered day elements are well-suited for those with DD. Participants (autistic adults ages 18-25, n=8) were recruited through purposive and snowball sampling and screened via a Zoom call. Research assistants attended interventions as participant observers, and collected data from sources like field notes and reflexive journals. Preliminary analysis of 6 months of data highlights key cultural factors (e.g., stepping back fosters growth, building opportunities for collaboration) and impacts on participants (e.g., increased self-determination) and students (e.g., greater awareness of disability). Our study highlights the value of ethnographic methods in developing complex occupational therapy interventions and suggests the Clubhouse model as a promising approach for supporting the transition to independence.
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